@lurawilson my age is 68. I have had DEXA scans every year since 1999. I was only in osteopenia and never diagnosed with osteoporosis in fact in 2023. I was determined by DEXA to be normal. When they opened me up for cervical spine surgery, my bones fell apart in their hands. C5 was paper thin. My surgeon said that DEXA scores are generalized. I have had complete hip and spine replacements so the places that they tested were not indicative of all parts of my body. Now I’m doing the DEXA with the TBS analysis and that is supposed to be better and more consistent from year to year. I’m still not testing as having osteoporosis just osteopenia, but my surgeon made it a .2 weeks ago to put that my bones are demineralized. I can tell you I showed Improvement at the time I started TYMLOS which was one year after the RECLAST infusion. And six months after that, I showed more improvement. This was on the CTX/P1NP test scores. Don’t get too hung up on some of these tests. My endocrinologist explained why the numbers aren’t exact and why he wasn’t so keen on establishing a baseline and testing me a few months later it has to be over the long haul.
The plan after TYMLOS is to go back and do two or three more years of annual RECLAST infusions. And then I am supposedly done. My doctor said for life I’m not so sure but I’ll find out when the time comes. He is a renowned endocrinologist at Ucsd. I hope that helps!