← Return to Diagnosed /w Ameloblastoma. Young Adult

Discussion

Diagnosed /w Ameloblastoma. Young Adult

Head & Neck Cancer | Last Active: 4 hours ago | Replies (18)

Comment receiving replies
@tomschwerdt

@meadowj

I've been thinking more about what you said.

When I originally had my tumor removed, the process inflamed or damaged the main nerve on that side of the jaw, so about a quarter of my face and part of the inside of my mouth (including part of my tongue) was numb for several months after the actual incision had healed over with gum tissue. As feeling came back, I had burning and itching around the edges of the numb area for several more months while the numb area shrank.

I still remember the stubborn final spot was on my chin - pretty far from the actual tumor removal. I'm wondering if you are experiencing something similar - part of your body repairing itself. It would be unprecedented for an ameloblastoma to meaningfully grow back in this short of a timeframe.

As an aside: Shaving a partially numb face is WEIRD! I hadn't realized how much I depended on sensation of the razor on my face to microadjust pressure.

For the imaging - I was referring to whatever Xrays or other imaging you already had done. You can often get online access to them.

Jump to this post


Replies to "@meadowj I've been thinking more about what you said. When I originally had my tumor removed,..."

Hi again, Tom,

It's been a long couple of weeks. I am still trying to gather assistance for expenses. I have X-rays too, technically. I just need to get them from the people who had previously provided me copies, which I sent to my referred surgeon. Sorry for the slow update! There has been a lot of back-and-forth on handling my procedure recently.