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Natural remedies for MAC

MAC & Bronchiectasis | Last Active: 2 hours ago | Replies (54)

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@kwi

I think what malambrit means by 90/10 is that she eats clean and healthy 90% of the time which is remarkable feat. I wish I could say the same about myself.
When I was first diagnosed, my pulmonologist insisted on airway clearance and she sent me to an ID doctor. Both were not specialists in MAC and both wanted me to start antibiotics right away even though I was not symptomatic. The pulmonologist did not do a good job of explaining why I needed to do airway clearance as I was not bringing up anything and I did not feel I had anything to bring up. I complained about having to do the AC to the ID doctor who then said he didn’t think it did anything anyway and as far as he was concerned I didn’t need to do it. Thankfully I didn’t fully abandon airway clearance and stopped going to that ID doctor and made an appointment at NJH. People on this forum helped me realize how important nebulizing 7% saline and airway clearance is to do every day.

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Replies to "I think what malambrit means by 90/10 is that she eats clean and healthy 90% of..."

I still can't wrap my head around the fact that there aren't more doctors that know about this disease and how to guide us. How I could go almost year without knowing about airway clearance and I found out by self advocating. Through many google searches, I found Linda Cooper Esposito, Be Clear. I scheduled a zoom call with her and she was a treasure box of information. That is how I knew to call The Mayo. I understand National Jewish is also gold standard. I love Colorado, climbed Mt Elbert, a 14er, to get married:) My career is a 6 day a week gig and would be very difficult for me to make regular treks for appointments. I was extremely impressed with The Mayo and hope I can continue with follow ups there.
Best,