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Natural remedies for MAC

MAC & Bronchiectasis | Last Active: 2 hours ago | Replies (54)

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@blm1007blm1007

I am too new to give you much advice but reading your post did flag, to me, 10 Acres, animals and gardening. Have you been told or read about how, when and where we possibly get infected? Have you tried wearing an N95 Mask while doing chores with all you have to do on the 10 acres? I take it the 90/10 refers to wine? Personally, you might reconsider that. I know that possibility is a downer having to possibly eliminate that. We all here on Mayo have had to give up much to help ourselves. Maybe others on Mayo will be best to hear from with regard to the wine. I'm not a wine drinker and if I had been...for me, I'd grudgingly would give it up except for a special blue moon event.
We are about even with the time factor of how long we have known that we have BE/MAC/MAI.
It took me, and I am still trying to 'perfect' airway clearance with ACT and Postural Drainage etc. etc. after finally learning about it and fully understanding it after much reading and research.
I was asked to start the antibiotics but decided against them due to all I gave thought to, for me. I do not feel unwell and have not had all the symptoms for an exacerbation or having had an exacerbation. My main problem is continuous need to clear the phlegm/sputum from my throat and that can also possibly be related to my having a hiatal hernia or possible GERD. I do release mucus plugs when I clear the phlegm/sputum from my throat and mostly late afternoon, early evening. I use a clear solo cup so that I can see what I am bringing up and easily see any mucus, mucus plugs or moisture. I clean and rinse the cup(s) with dish detergent, water and a jar brush.
Have you read about shower head maintenance cleaning or replacing? Have you read about what might be in the hot water aerosols when showering, and why we need to do maintenance cleaning or replacing the shower head or keeping the hot water tank above 130 135 degrees?
Much of what I am asking can be answered by reading other 'threads' on this Mayo Clinic Connect.
I learned of my BE via my PCP ordering a no contrast C Scan 8/2022. I also did not know I had MAI until I went up to National Jewish in Denver in 10/2023.
This is a tough journey to begin with and takes much time in the beginning to understand, it was/is for me.
Hope your day goes well and you motivate yourself to do right by yourself today and going forward. You can do it!!
Barbara

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Replies to "I am too new to give you much advice but reading your post did flag, to..."

Hi Barbara, Thank you for the detailed reply. I am not familiar with MAI. I replaced my very old hot water heater. I don't wear a mask but wet down the soil before working in the garden. The 90/10 is I eat clean 90%. I don't eat processed foods except for very clean protein powder, protein bars. I make sourdough bread and it is white flour, I eat a slice most every day and I have a glass of wine most every night. I have a fairly new shower head but need to do better with cleaning / replacing. I have shortened my showers dramatically which pains me, my shower ritual was a great relaxer for me, an escape of sorts. Like you, I don't really have any symptoms, if I hadn't coughed up blood I would likely never been diagnosed. I really thought after a year of meds, I would have cleared. Thank you again, I pray for your continued strength.