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Neuroendocrine Tumors (NETs) | Last Active: Feb 26 4:48pm | Replies (13)
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Thank you so much for this link! You are so kind to think of me in this way. I’m so anxious that my legs feel like jelly and even my teeth are chattering. I have a long history of anxiety and panic disorder (16 first panic attack, 73 yr old this year); That was brought on by my worry about a medical I had to have for my employment. So the anxiety re this appt is through the roof. My darling sister is keeping me afloat as best she can - so unfair on her to carry me like she is. My husband went into care this year as he was having multiple falls, one which req ICU. I’m trying lots of self talk to try and break how I feel down to manageable bits. Thank you for reading this and also for your kind words. Cathy
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Hi @catherinemary - I am sorry to hear that you are going through this. I remember when I first learned of my NETs 6 years ago. I was floored. One of the things that I have learned over the years is to try to spend the time educating yourself about things like this and learning more about the disease. It helped me get my head around it and define a path forward. I can tell you that I figured that I was not going to make back then, and yet, here I am, still chugging along. One of the sites that I found helpful years ago was from the Neuroendocrine Tumor Research Foundation at https://netrf.org/for-patients/. I know it sounds cliche but knowledge is power and it helped me get under control and map out a plan. Sending good thoughts your way and take care of yourself.