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Replies to "Reading about your success with Actemra infusions and eliminating prednisone in your life, gives me hope!..."
Polymyalgia Rheumatica (PMR) | Last Active: 1 hour ago | Replies (74)
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Replies to "Reading about your success with Actemra infusions and eliminating prednisone in your life, gives me hope!..."
Actemra has helped me tremendously. It was still a rocky road to finally taper myself completely off Prednisone. Depending on how long you have been on Prednisone ... it might work faster for you.
People say Actemra doesn't help with adrenal insufficiency. I would say it might not help directly but indirectly it does ... without Actemra, I would have never been able to stay on a low enough of a Prednisone dose that would allow my adrenals to recover. I had to stay on 3 mg or less of Prednisone for more than 6 months for my cortisol level to improve. I couldn't get much less than 10 mg without Actemra. Whenever I managed to get to 7 mg ... I flared and had to increase my dose again.
Actemra doesn't suppress my adrenal function so that was a huge benefit. Plus if Actemra doesn't work it can be stopped easily. It is worth a try but no guarantees. Actemra also has some side effects and it is expensive,