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low level of vit D3

MAC & Bronchiectasis | Last Active: 3 hours ago | Replies (7)

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@bayarea58

I have been chronically low on vitamin D most of my adult life and while that may have some association to my developing lung disease I do not think it is the result of my current lung disease as before my recent BE/MAI diagnosis, I had no history of lung disease. You haven’t given the measurement unit for your numbers so it is hard to know why it is being considered insufficient. I will say I was on large dose vitamin d3 supplements for a few years which significantly raised my phosphorus levels and I was uncomfortable with the potential long term implications of that so am now on lower doses, 2000 ml per day. I will say, it doesn’t do much to raise my vitamin d levels. Keep in mind that for most of us winter time presents our lowest levels of vitamin d due to diminished time in sun. So it may be worth noting what time of year you are testing as that might explain some variation. Also, if you are ruthless with wearing sunscreen (as I am bc skin cancer runs in my family) note you will not absorb vitamin d from the sun so you will need strategies to address, as with many things, balancing various risks. I have not yet seen a NTM specialist but my pulmonologist and ID doctor have said nothing to me about my vitamin d levels, which if I am reading your numbers correctly are much lower than yours though technically “normal” based on lab ranges. I have read that it is preferable to have higher d levels with lung disease so I do find it strange that no one has raised with me since the BE/MAC diagnosis and I do intend to raise with NJH on my visit. Unfortunately I know from experience it is not a value I have had success in substantially raising so not sure what they would recommend as mega-dosing is not something I am comfortable with given past experiences.

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Replies to "I have been chronically low on vitamin D most of my adult life and while that..."

Thank you for sharing all this. Yes it’s winter and I live in the Chicago area so even if I take a walk outside I am bundled up plus wearing a mask from cold air. My September numbers were better so I guess I will wait for spring to come and see the levels then.