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Autoimmune Diseases | Last Active: Feb 23 6:38am | Replies (13)
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I thought MCAS syndrome is not an auto immune disease. I’m 70 and have luckily made it through many surgeries and health events without meds. I’m so allergic to so so many drugs. I have to refuse and ride many things out without help. I’ve heard it can be MCAS but in all my years not one doctor has ever said a word. They simply say it’s a terrible place your in to get such severe reactions to so many class of drugs. They usually blame it on fillers so we try compound pharmacy places but that hardly ever works. It’s very scary to have so many allergies to drugs.
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I know that it has been a recognized diagnosis for only 15 or so years. That is why it can be so hard to find a doctor. After my daughter's diagnosis at Mayo, the doctor said she would have to find a doctor who would treat her in her state. It is recognized as part of the trifecta--POTS, Ehlers Danlos, and Mast Cell. There is a book that might interest you by the doctor who was one of the first to realize there was research to be done. Never Bet Against Occam by Dr. Lawrence B. Afrin. Available on Amazon. One tidbit-fibromyalgia patients have more mast cells in their skin than most people. There are so many links between these disorders.