← Return to DIPNECH diagnosis. Has anyone had radiation?

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@californiazebra

You definitely need to get a second opinion from a NETs specialist. Other types of lung cancer are not treated the same as lung NETs and DIPNECH so if they are not experienced with NETs then your treatment plan may be off base. Glad someone has given you a NETs contact for your area. Remember in this day and age many specialists are willing to have a video consultation with you so you don’t have to travel. My NETs team coordinates with my local oncologist for my convenience. I also have lung NETs and DIPNECH. Radiation has not been suggested for me. I had microwave ablation to destroy the largest malignant tumor and were just monitoring the other 50 nodules. I’ve been taking octreotide injections for 4 years now to alleviate respiratory symptoms. Best of luck.

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Replies to "You definitely need to get a second opinion from a NETs specialist. Other types of lung..."

I have the same. I did have radiation on my left lung, SBRT, on two tumors. It was 5 sessions. Have been taking sandostatin shots every month the past two years. I get scanned every 6 months now and have had no evidence of disease and smaller tumors are stable.