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Diagnosed with sarcoma? Let's share

Sarcoma | Last Active: 1 day ago | Replies (887)
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@stewgr

Hi
Stewart here, 40 yo
Been diagnosed with Synovial Sarcoma of the prostate, which is apparently very rare.
14cm mass in my pelvis and mets to the lungs.
Felt no symptoms until i started having urinary symptoms and then retention. Thats when the mass was found. All up 3 weeks from symptoms to diagnosis.
Best they can offer is palliative radiation and chemo

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Replies to "Hi Stewart here, 40 yo Been diagnosed with Synovial Sarcoma of the prostate, which is apparently..."
jeshaw6801 | @jeshaw6801 | 1 day ago

Hugs to you.

Please work with a sarcoma center as they are shown to have higher survival rates. I have R-LMS which is also rare . The best center is md Anderson in Texas but each state could lay claim to their centers ( including Mayo. If going to a sarcoma center and offered only palliative care...I would hitail it to the best center .... Md Anderson. I think they do video appts too.

If all they offer is pallitive

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