Connect
← Return to Lanus solostar side effects
Discussion
Comment receiving replies
I’ve had diabetes for 50ish years. I was on Lantus at some point and had really good results with it. I wasn’t aware of any side effects while using it. I was diagnosed with peripheral and autonomic neuropathy. Both were considered complications of the diabetes. It was long before being on the Lantus.
If you don’t mind me asking, what does the Autonomic Polyneuropathy consist of? My Autonomic Neuropathy was in the form of gastroparesis.
You mentioned being off of insulin for 2 months. Why was that? I’m trying to understand the timeline of your insulin use, being off insulin then back on and then your side effects appearing (as you seem to be also).
I have one other idea. (My daughter has no pancreas function. It was destroyed due to chemotherapy and immunotherapy for breast cancer. She is done with that now, had a double mastectomy and is preparing for breast reconstruction.) She is cancer free now but is on insulin. She was on Lantus but it “did not agree with her” and she was switched to a different long acting type of insulin. I can ask her in what way did it not agree with her. Maybe her experience will shed some light on your own.
Come to think of it my diabetic brother had to try a few different types of insulin before finding the right fit for him. Thank God there are options and we have providers that can help us find what works best for our particular situation.
Replies to "I’ve had diabetes for 50ish years. I was on Lantus at some point and had really..."
Connect
Hi,
Autonomic polyneuropathy is the Autonomic nerve system and the polyneuropathy is all the rest of the nerves. When neuropathy is used it is usually a specific neuropathy, poly is all of them. It is likely from many years of undetected diabetes and untreated high blood pressure with a serious bout of Campylobacter which almost killed me, being the icing on the cake. I have not been diagnosed with gastroparesis but then they have stopped looking as my digestive system is no longer working correctly from the Autonomia. It takes me 4 hours to digest fluid and 6 hours to digest food. If I consume more than 4 slices of bread per day and 6 cups of fluid I'm in trouble, I can manage 2 eggs as a substitute for 2 slices of bread and regularly do. Keep eating and I slip into SIBO. If I act quick enough I can stop the SIBO, but not always. I'm in a constant state of hunger and am on prescription multi vitamins. It is a difficult act to balance my diet and not satisfy the constant hunger. Fortunately I now recognise the symptoms of going into SIBO and also keep a course of antibiotics on hand just for that.
I have multiple health issues which dictate what I can and can't eat in conjunction with the digestive problems. I'm told I should eat what I can regardless if it is good for me or not. The objective being to get food into me anyway I can.
Insulin has been doing a great job for me but as we now find out that is and has come at a price.
I'm due to have the insulin reviewed next week. Oral medication has proved to be a problem which is why I was put on insulin.
I stopped insulin and my BP meds 2 months ago because I felt there was something wrong. I figured as Autonomia had a firm grasp of me what the H, throw caution to the wind and see how long I survive. I always knew I felt better off meds so gave it a whirl. Yes I do feel totally different off meds able to get on with life, get up in the morning wanting to work or do something. In the 2 months since I have been able to do all the maintainance jobs around the house that had become around to it jobs. The difference of being alive or the living dead.
I now only medicate for my digestive system which I need to or the game won't last long.
My gastrologists tell me to just do what feels right as they cannot help anymore, there being no cure or treatment for this incidious disease. I have experienced everything from temporary paralysis being unable to move from the waist down, having great difficulty walking unaided to being constipated for days, severe vertigo, tinitus and instability. I have managed to push through everything but the digestion, even survived 15 TIA's last year.
As it is now I'm undecided what I will do, but the main objective is to be as comfortable as possible.
Cheers