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Autoimmune Diseases | Last Active: Feb 23 6:38am | Replies (13)
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It is not easy. Not many doctors are knowledgeable. She finally went to Scottsdale Mayo and was diagnosed with several autoimmune disorders that tend to go together. The doc is a neurologist, but many different kinds of doctors can if they are interested enough to learn about it. I mentioned in another post about a FB page that is not active but still online. They have a file of doctors' names who have been submitted by mast cell patients. They are shown by state.
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I thought MCAS syndrome is not an auto immune disease. I’m 70 and have luckily made it through many surgeries and health events without meds. I’m so allergic to so so many drugs. I have to refuse and ride many things out without help. I’ve heard it can be MCAS but in all my years not one doctor has ever said a word. They simply say it’s a terrible place your in to get such severe reactions to so many class of drugs. They usually blame it on fillers so we try compound pharmacy places but that hardly ever works. It’s very scary to have so many allergies to drugs.