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Any feedback on Lyrica for PN would be appreciated

Neuropathy | Last Active: 1 day ago | Replies (18)

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@camsrud1

@einer

When you were first diagnosed did you have issues show up on an EMG/NCS? Also if you are OK answering what were your early symptoms?

Thank you,
CA

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Replies to "@einer When you were first diagnosed did you have issues show up on an EMG/NCS? Also..."

Hi @camsrud1, Welcome to Connect. I thought I would pop in while you wait for @einer to reply. I only have numbness and a little tingling with my idiopathic peripheral neuropathy but I will be 82 in a couple of months and my symptoms started in my late 40s with my toes feeling numb. I never bothered have a nerve conduction study because was told all of my primary docs that it's probably nerve damage but nothing can help with the numbness so I never had the tests. Then as it keep progressing and got into my ankles and started going up into the legs in 2016 I decided I wanted to know and had the EMG and nerve conduction study but didn't have the nerve biopsy. Sadly, I got the same answer from my Mayo neurologist that he didn't have anything that helps with the numbness. Actually, that is why and how I found Connect - searching for what might help. I shared my neuropathy journey in another discussion here along with other members - https://connect.mayoclinic.org/discussion/member-neuoropathy-journey-stories-whats-yours/.

Have you setup an appointment with a neurologist? What symptoms do you have now?