@jenniferhunter
PTs are afraid to work on me with CCI symptoms which has become more debilitating as it is progressing than TOS in 2024. Unfortunately, there are about 5 neurosurgeons in US who are familiar with CCI when it falls into the grey area of not so severe where you need c0-1/2 fusion right away. There is one Regenexx location, Centeno & Schultz Clinic, in Denver, CO that does bone marrow concentrate/PRP to address CCI issues due to ligament laxity (many from auto accidents/sports accidents/hEDS) using procedure called PICL (Percutaneous Implantation of the CCJ Ligaments) which I am waiting on in April 2025 as a non-invasive treatment next to fusion surgery unfortunately because my recent botox treatment ( Jan 2025) for cervical dystonia made my CCI so much worse that I need to wait for it to wear off (3 months) before PICL. I am seeing a visiting MFR lady who has worked on dura flow because my nervous system is so hyper being upright with CCI. I will ask her about pelvis treatment next time. There is no guarantee that PICL will work either since these treatments are individual based ( your stem cell count/system wide inflammation level/no injuries during the long months of healing, 3 to 6 months to a year) but some had success so that is my hope.
It's really unfortunate how unfamiliar medical population is from radiologists to neurosurgeons...wrt upper cervical issues...losing time/functionality while passed around so many consults. This has been just how it is for me. Hope you are well Jennifer.