Deedee, have you received any news about your biopsy? I'm thinking of you & hoping for the best.
I'm going downhill so fast now. I have so many weird things happening that the doctors just shrug their shoulders and say they have no idea what's going on. It's very upsetting because I can't help but think that if I had adequate health care with excellent laboratories and excellent pathologists that someone could figure out what's going on in my body. It's complicated because I'm in Mexico (20 years) & doctors here are not required to do residencies or anything like ongoing education to keep their license to practice. Even the best doctors in the capital city are ignorant about implants causing cancer. The pathologists are subpar, the labs also, & of course the hospitals & doctors are too. Hospitals don't have blood banks. If you have surgery & might need blood, you have to go find your own volunteers to donate your blood type before they operate. Many hospitals are so dirty that I would not trust them with my cats. It's very rare that I see gloves on any healthcare professional. The phlebotomists never wear gloves, not since I arrived here in 2005. I bring clean gloves to them when I go to the lab, plus a mask, because I hardly ever see anyone wearing a mask. The doctors don't take the Hippocratic Oath when they finish medical school. They don't take any oath at all. Being a doctor is mainly seen as a way to hopefully make a lot of money. Most don't take credit cards, cash only, no receipt, because they don't want to pay any taxes on their income, so they are careful to avoid a paper trail. I know I could get a diagnosis (DX) for all the new things I'm going through right now if I could be seen at the Mayo Clinic, but because I don't live in the US, I don't have any health insurance in the US. And there's no way I could pay for anything because I simply don't have the kind of money required in the US for any kind of medical care. One doctor here said that the fascia on my legs & arms is disappearing and little bits of muscle are popping up to the surface (the epidermis) through the holes where the fascia is fragile & thin. Who really knows what these little bumps are? They are extremely sensitive and super painful to touch. I had a tumor on my back removed & the path report said it was a dermatofibroma, no malignancy seen. But how do I know if they used the proper stains to examine the cells? It could possibly be a soft tissue sarcoma, which often look like dermatofibromas. Now another new thing is that I can't open my eyes at certain times of the day. If I hold ice on the lids for a few minutes, then my eyelid muscles will work again. It can be a Sx (symptom) of Myasthenia Gravis but the labs where I live are not able to do that blood test because they don't have the reagents necessary. It can be a Sx of many other things as well but no doctor here will have a clue. I'm so frustrated, & my MS is so much worse. It's been over 4 years since I could walk. So tired of being in a wheelchair, can't go outside anywhere because the sidewalks are crumbling & the buildings don't have ramps. No handicap bathrooms anywhere. This is the worst place to live if you're in a wheelchair. Sometimes my husband has to carry me upstairs because there's no elevator. And the entrance to buildings never have ramps. Sorry for whining. I'm isolated from society. I don't know where this type of post would be proper to make. Frustrated. I don't mean to dump on you or anyone. I'm very sorry for all my whining. I know we all have our own histories of frustration with the medical profession. No one is exempt. I hope that you are doing well.