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Pancreatic Cancer Group: Introduce yourself and connect with others
Pancreatic Cancer | Last Active: 1 day ago | Replies (1541)Comment receiving replies
All tests are back. No tumor markers. The largest cyst which is on the tail is 2.3cm. There are others on tail and one in middle. Surgeon wants to follow up with mri in 6 mos. Says spleen has lots of blood supply with pancreas and thats the reason it is frequently removed with the tail.
I had EUS FIRST FOLLOWED BY MRI AND OF COURSEW BOTH HAD COORDINATING BLOOD WORK. I HAVE KRAF MUTATION.
(Sorry for caps!).
It’s all precancerous i guess so he chose 6 mo follow up vs 12 mo the radiologist recommended.
I feel like we are just waiting. Which is a bit nerve-wracking. What caused you to make the decision to have surgery.
I have great confidence in the surgeon.
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We have been watching for 3 years. 3 cysts on head. Body and tail shot from a severe case of acute necrotizing pancreatitis. Still making insulin but not making digestive enzymes so have been on Creon for 3 years.
January this year EUS performed with one biopsy on cyst that had nodule. Results came back positive. Since it is early hopeful it is contained. Opted for Total Pancreatotomy since the rest of my pancreas is not working hardly at all and to eliminate a home or more cancerous lesions in the future.
I am prior lung cancer that they also found early. Lung cancer does not move to pancreas, but the reverse can happen. Last March I had to have a second lung surgery to remove all the plural effusion inflammation that was being caused by the pancreas fluid. (Every case is different but make sure they are explaining why they are still good with waiting.) I waited for the 3 years and truly just now need surgery.
Good luck and let me know how your journey progresses.