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Surgery for thoracic outlet syndrome

Bones, Joints & Muscles | Last Active: Mar 13 12:15am | Replies (32)

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@snowmass

Hello,
My journey that started with TOS has gotten now much more complicated with cranio cervical instability, cervical dystonia, occipital neuralgia…etc.
Since you mention brain fog, I just wanted to share that about a year after TOS, i started having it also along with lightheadedness and heaviness at the occipital area. One doctor I saw for my symptoms who was familiar with CCI said that TOS is caused by cervical issues which tightens the scalene and etc sometimes. Having said that since only mild disc bulge at c5/6 with bone spurs was detected via MRI at the time, it’s hard to pinpoint. Many unhelpful things happened, chiro, acupressure, numerous pts and in the end, I currently have found that there are more things going on. CCI with translational bai 5-6 mm, mild cervical and thoracic scoliosis as well as sacroilitis with uneven pelvis. Without going into too much details of my complicated journey in 2024, just wanted to add checking for any cervical issues may be beneficial?
I also found out that being hyper mobile predisposes you to TOS…
Best wishes to you

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Replies to "Hello, My journey that started with TOS has gotten now much more complicated with cranio cervical..."

@snowmass I am similar to you in that I had cervical spine issues along with TOS and pelvis misalignment. There are ways to realign the pelvis. All of that affects everything else. My PT was addressing all of that and full body alignment with myofascial release. Have you tried anything like that?

I had the first rib removed because of TOS this was 20 years ago and the surgery was experimental at the time.
The surgery worked
Then 2 years ago I coughed real hard and my lung slipped up into my neck. They operated pulled my lung back down and put mesh in to hold lung down
Last week I coughed and it went back up into my neck again
I went back to the surgeon and he won’t operate again he said he thought he could fix it he tried and it failed he won’t operate again and fail again he said
So now I’m trying to find another surgeon to try and fix this