TNBC treatment needing confirmation: What is standard treatment?

Thank you, but we all go through a lot. I just wanted you to be sure that if something does not seem right, get second opinions, ask questions until you are satisfied. I learned later that there are two techniques to install a port and the one my Dr chose is the one more likely to puncture. You should not be worried about the port, as I understand this is a rare occurrence.
My tumor was 2.0cm, stage 2a, no spread. Mine probably should have simply been removed but they decided on chemo before surgery. Surgery was successful and I was declared “cancer free”, but I never feel free of it. Interesting to note that after genetic testing which my treating hospital declined to do, but Moffit recommended, I learned I had the ATM gene. I believe now that the protocol is that all TNBC patients should be tested. Good to know, as it affects the chemo choices made. I eat my antioxidants and do what I can. You might be interested in the MD Anderson study on statins and TNBC. I now take Lovastatin each day.
I am doing ok so far, but the concern never leaves me.
Very best to you.

After being diagnosed in 2019 with TNBC at age 66. I too underwent genetic testing. I was negative for all of the common BC genes, but on the back page was a sentence regarding a VUS-variant of unknown significance. It was the ATM gene. I’ve asked my doctors about this but they’ve indicated that unless the testing company sends me a report with updated information, I don’t need to delve into it. My mom died of pancreatic cancer so this gene does concern me-not just for myself, but for my children and grandchildren. I know I cannot change this, but I’m the type of person the likes to be informed.

Best wishes too all,
Cindy

Yes.2b.

I have to say just stay strong and listen to your body (my body said tired while I was doing the chemo and slept a lot).
I was diagnosed with TNBC Aug 2023. The tumor was 1.6cm, I have to say that I am thankful for my team because they were on top of everything from the beginning.
The treatments were as follows:
total 12 weeks ~ Paclitaxel (Taxol) 1x week, Carboplatin (Paraplatin) every 3 weeks
next 8 weeks - Doxorubicin (Adriamycin PFS) & Cyclophosphamide (Cytoxin) every 2 weeks, Keytruda every 3 weeks
After the chemo was completed was the surgery. I had very dense breast tissue and also get little fatty tumors so I decided to go with bi-lateral mastectomy, as far as radiation, they said that if the lymph nodes were not involved then no radiation was necessary.
I hope this helps

One other thing that I can suggest if you have to go through Chemo, look into some of the powder meal replacements, they are expensive, but they contain a lot of the minerals that the chemo will take from your body which I do believe helped keep some of the side effects at bay. I did use LyfeFuel due to being diabetic and it not having a huge amount of sugar in it, but there are several out there

Congrats on your successful treatment. You can be retested, but your children should also be tested. My daughter had the ATM and my sister did not. It does raise your risk of BC and several other cancers, but biggest for BC. The original testing company may do it for free. My daughter and sister were both free through my testing company.
All info is good info. I agree.

Thank you so much for your responses. Getting my port put in today. Chemo may be delayed for a week from mastectomy incision possible infection. I’ll know soon enough. I definitely don’t want to have implant issues. If I need to hold off for a week… so be it. I’m only 4 weeks out from my bilateral m with reconstruction. Apparently the god standard for starting treatment is 6 to 8 weeks after surgery.
As far as supplements… I’m seriously sad because thc lowers survival considerably, as do barbiturates. The more research I do, the more it’s drilled in my head as not being an option for my type of cancer. Even anti depressants lower overall survival. Tramadol is looking as a possibility. I’m in this to beat this bad boy…