Connect
Discussion
Comment receiving replies
Replies to "Hi , as Jeff says I have non temporal , but extensive GCA & PMR diagnosed..."
Polymyalgia Rheumatica (PMR) | Last Active: 1 day ago | Replies (19)
Comment receiving replies
Hi , as Jeff says I have non temporal , but extensive GCA & PMR diagnosed with PET scan .
Started 50 mg oral pred and 162mg subcutaneous Actemera immediately. Taper off pred three months.
I’m 4months post diagnosis on Actemera as mono therapy
Im in remission according to pathology and symptoms (symptom free )
I feel fortunate to have such treatment success so far .
Replies to "Hi , as Jeff says I have non temporal , but extensive GCA & PMR diagnosed..."
Congratulations, and hope you remain in remission.
Connect
This condition is so scary. I have mild to moderate tmj-how do I tell the difference between jaw tightness and pain due to GCA or us it from tmj? I carry a lot of stress in my jaw, not helping that I'm terrified of going blind. I see the rheumatologist on Monday, hopefully he can answer some of these questions. My primary doctor said he's had extensive experience with pmr and gca. Hoping for some answers and some ways to cope with this!