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Just diagnosed with Bladder Pain Syndrome / Interstitial Cystitis

Kidney & Bladder | Last Active: 3 days ago | Replies (45)
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@liz1964

Did you ever fi d a solution to your bladder problems? I have ic and diet helps along with regular outpatient treatments of Hydro distension with clorpaction, performed by my urologist. It is a lifesaver. I also do not eat nuts, spicy foods or citrus, or tomato products, well i try not to. Lol. I also limit caffeine . All this really makes a big difference in my pain and quality of life.

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yanina | @yanina | 3 days ago

Was constantly told I have Bladder Pain Syndrome / Intercystal pain for 20 years.
Was being treated with lots of antibiotics until eventually they stopped working.
Was being treated with bladder hydrodistention under full anesthesia, didn't work
Was given antibiotics before and after sex, didn't work
Was given Elmiron Pentosan polysulfate, did nothing
Was given bladder installations, didn't work
Until the day I had severe bladder infection with blood and was under 14 days of IV Levofloxacin + Ornidazole
After that treatment I forgot I had panful bladder for the past 20 years at all and lived like normal people.

Here was the answer, it was just highly resistant bacteria that wouldn't respond to the standard oral protocol treatments that lived in the bladder epithelium and wouldn't be picked up by the standard PCR test due to lower amount quantity (the labs are measuring the bacteria that are > 10^5) :
https://pmc.ncbi.nlm.nih.gov/articles/PMC1476055/
Until 3 years later I had sex and 1 week later all my symptoms came back.
So now I am going to be treated with Meropenem and no sex for me until the vaccine:

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