Eliminating Foods for Neuropathy pain

Posted by avmcbellar @avmcbellar, Jul 20, 2019

I have tried doing without certain foods and drinks containing caffeine and have discovered it helps me to lower my neuropathy pain to a level that is tolerable. It is not easy to eliminate chocolate, tea, and coffee from my diet.

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Profile picture for John, Volunteer Mentor @johnbishop

For me stop sugar, has meant eating as little sugar as possible (what can I say, I love chocolate and cookies!). When buying something, I always read the ingredients label and try to buy the one with no added sugar or a lower amount of sugar. I have stopped all soda pop but will sometimes have a diet soda instead of coffee or tea if I'm eating out. It is a little difficult sometimes because a lot of processed foods contain extra sugar so I try to eliminate as much as possible for me.

Think how easy it must have been for folks 100 years ago when they didn't have this too much sugar problem. I think some of us struggle a little more than others but whatever you can do to reduce your sugar intake is a plus in my non medical opinion.

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On diet soda be very careful about aspertain! In most Diet Coke etc and is instant pain boost for many! Watch lemonades too - lots of ‘diet’ foods !

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Profile picture for cncwi17 @cncwi17

Everytime I go into a car and my husband drives my right foot vibrates alot after I get out of the car. I put two pillows on top of my foot. It helps, but I still get some vibration, especially my right toes and under my right toes. It seems I can't drive, but I want to drive. Nothing seems to help. What would you suggest? Thanks.

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Could be damage to the peroneal nerve. I also had trouble driving; I could not press my right foot against the accelerator or brake. It turned out I was compressing the peroneal nerve by the way I crossed my legs. The peroneal nerve loops half way around the outside the bone just below the knee. I was pressing against it when I crossed my legs. I stopped crossing my legs and two weeks later it was back to normal. The condition is called "drop foot"

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I'm glad you are finding some relief by eliminating or cutting back on caffeine. It IS challenging to remove foods from our diets, especially those that are easy to eat, but making dietary changes can bring the biggest relief. Other foods that aggravate and make neuropathy worse (as bad as caffeine or worse) are gluten, sugar, dairy, and brown rice (found in most pre-made gluten-free products). Also, don't take supplements with B6 or drink energy drinks until your B6 levels are tested. High B6 can cause neuropathy or make existing neuropathy unbearable. We get more than our daily required B6 from our diet. I am two months off of B6 in my multivitamin, and my symptoms are easing. I also don't eat the items listed above. I wish you the best!!!

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Went just 4 days without caffeine (switched to green tea) and gee whiz! Drastic improvement in foot neuropathy! Can hardly believe this, thank you! Thank you!

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Profile picture for inmagic @inmagic

I'm glad you are finding some relief by eliminating or cutting back on caffeine. It IS challenging to remove foods from our diets, especially those that are easy to eat, but making dietary changes can bring the biggest relief. Other foods that aggravate and make neuropathy worse (as bad as caffeine or worse) are gluten, sugar, dairy, and brown rice (found in most pre-made gluten-free products). Also, don't take supplements with B6 or drink energy drinks until your B6 levels are tested. High B6 can cause neuropathy or make existing neuropathy unbearable. We get more than our daily required B6 from our diet. I am two months off of B6 in my multivitamin, and my symptoms are easing. I also don't eat the items listed above. I wish you the best!!!

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I had no idea that caffeine was bad. I drink about 5 cups of coffee every day. Thank you for the info and I will definitely cut back on caffeine. 😊

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Profile picture for cdianeb @cdianeb

I had no idea that caffeine was bad. I drink about 5 cups of coffee every day. Thank you for the info and I will definitely cut back on caffeine. 😊

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And yet, I'm told that coffee in moderation is good for my PD. Yikes, it's so confounding. But I'll try the green tea (but it has caffeine, doesn't it?) Hey....what if it's the tea itself, not the caffeine?

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Profile picture for pfbacon @pfbacon

I don't eat any chocolate, haven't since the eighties, don't miss it. It's basically fat and sugar with some caffeine ... skimpy in nutrients. Peggy

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Dark chocolate above 70 percent cocao contains flavonoids, these have shown in many medical tests to help many people with nerve pain despite caffeine content.
Some dark chocolate contains resvervaterol which helps reduce inflammation and reduce the risk of heart disease

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Hi All: I am a 68 year old male and believe I have been suffering from peripheral neuropathy since I have been about 15 years old. At age 27 all hell broke loose with numbness, burning skin, vibrating sensations, and a bout of optic neuritis. At one point I was diagnosed with MS by an opthaloneurologist. Back in 1984 I did some research and went on the Swank Diet--less than 15 grams of solid fat per day and daily tablespoon of cod liver oil. Over time, my symptoms subsided and I was able to carry on with a normal life with only occasional episodes of burning skin. I saw other neurologists but all doubted the diagnosis of MS.

What got me through the rigors of Swank diet of limiting red meat and less than 15 grams of solid fat daily was sugar. I drank lots of Coca Cola. Anywhere from 6 - 10 12 oz can daily. In 2017, I developed Meniers Disease and about 2018 I began to develop a tingling/numbness/burning in my left small toe that was made worse by hot baths and showers. I thought that MS had returned. In early 2023 that tingling and burning sensation had spread to both feet and I was again developing burning sensations on my arms, legs and a crawling sensation on my face.

At this point I began to suspect that my issues were not MS and more related to PN. A neurologist who listened to my story thought the same. He ordered MRI of my brain and did skin biopsies. The MRI showed no evidence of MS but the skin biopsies confirmed SFN. Subsequent tests showed no assignable cause for SFN. So I am one of the unlucky (or maybe lucky) to have idiopathic SFN. Even though my SFN was idiopathic, many idiopathic SFN turn out to be eventually be type II diabetes. And in my case, because I consumed so much sugar, I suspected this might be the case with me even though A1C, fasting sugar, and insulin levels were all within normal ranges.

For the past two years I have done the following: 1) drastically reduced carbohydrate consumption--currently at a target level of 50g/day, 2) Mediterranean Diet, 3) 4000 mg/day of Omega 3 Carters Fish Oil, 4) 2000 mg/day of sublingual vitamin B, 4) Daily Hylands MagPhos, 5) 250 minutes per week exercise (40% spin bike, 40% rowing, 20% strength training). I am pleased to report that burning skin/tingling/numbness has been significantly reduced. Also, while my sugar results are still normal, I have improved results of A1C is now 5.1, fasting blood sugar is 83, and fasting insulin levels are at 15. I should also add that over the two year period since adopting this regime I have lost 33 lbs going from 183 to 150 lbs. Currently, I am experimenting with 1 serving per day of unsweetened cocoa powder and unsweetened 100% cocoa chocolate bars to see if I can improve things further by improving capillaries heath. Also, I have experimented with 5 servings/day of matcha green tea. But that seems to make things worse.

Hope my experience helps others.

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Profile picture for dgbarar @dgbarar

Hi All: I am a 68 year old male and believe I have been suffering from peripheral neuropathy since I have been about 15 years old. At age 27 all hell broke loose with numbness, burning skin, vibrating sensations, and a bout of optic neuritis. At one point I was diagnosed with MS by an opthaloneurologist. Back in 1984 I did some research and went on the Swank Diet--less than 15 grams of solid fat per day and daily tablespoon of cod liver oil. Over time, my symptoms subsided and I was able to carry on with a normal life with only occasional episodes of burning skin. I saw other neurologists but all doubted the diagnosis of MS.

What got me through the rigors of Swank diet of limiting red meat and less than 15 grams of solid fat daily was sugar. I drank lots of Coca Cola. Anywhere from 6 - 10 12 oz can daily. In 2017, I developed Meniers Disease and about 2018 I began to develop a tingling/numbness/burning in my left small toe that was made worse by hot baths and showers. I thought that MS had returned. In early 2023 that tingling and burning sensation had spread to both feet and I was again developing burning sensations on my arms, legs and a crawling sensation on my face.

At this point I began to suspect that my issues were not MS and more related to PN. A neurologist who listened to my story thought the same. He ordered MRI of my brain and did skin biopsies. The MRI showed no evidence of MS but the skin biopsies confirmed SFN. Subsequent tests showed no assignable cause for SFN. So I am one of the unlucky (or maybe lucky) to have idiopathic SFN. Even though my SFN was idiopathic, many idiopathic SFN turn out to be eventually be type II diabetes. And in my case, because I consumed so much sugar, I suspected this might be the case with me even though A1C, fasting sugar, and insulin levels were all within normal ranges.

For the past two years I have done the following: 1) drastically reduced carbohydrate consumption--currently at a target level of 50g/day, 2) Mediterranean Diet, 3) 4000 mg/day of Omega 3 Carters Fish Oil, 4) 2000 mg/day of sublingual vitamin B, 4) Daily Hylands MagPhos, 5) 250 minutes per week exercise (40% spin bike, 40% rowing, 20% strength training). I am pleased to report that burning skin/tingling/numbness has been significantly reduced. Also, while my sugar results are still normal, I have improved results of A1C is now 5.1, fasting blood sugar is 83, and fasting insulin levels are at 15. I should also add that over the two year period since adopting this regime I have lost 33 lbs going from 183 to 150 lbs. Currently, I am experimenting with 1 serving per day of unsweetened cocoa powder and unsweetened 100% cocoa chocolate bars to see if I can improve things further by improving capillaries heath. Also, I have experimented with 5 servings/day of matcha green tea. But that seems to make things worse.

Hope my experience helps others.

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Welcome @dgbarar, Thanks for sharing your experience with what has helped you. I know it had to have been difficult for you to deal with the symptoms at age 15 trying to understand what's going on with the numbness, burning skin and more. I've been fortunate not to have to deal with the burning or pain but have been dealing with the numbness since my mid 50s or so starting with the toes. I've only had the numbness with some tingling. I shared my neuropathy journey in another discussion here - https://connect.mayoclinic.org/comment/310341/. Since my diagnosis was also idiopathic I've often thought it may be related to my being in the pre-diabetes category most of my adult life. It's only since 2018 that I started focusing on eating healthier and eliminating as much sugar and carbs as possible for me since I do like treats once in awhile. What really helped me was learning more about the metabolic syndrome and learning about intermittent fasting and low carb eating. There is another discussion on that if you are interested.
-- Low-carb healthy fat living. Intermittent fasting. What’s your why?
https://connect.mayoclinic.org/discussion/low-carb-healthy-fat-living-intermittent-fasting-whats-your-why/

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