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New Dx of PMR

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (30)

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@jeff97

I didn't apply for financial assistance since my insurance paid for my Actemra, but I found a couple of private sources that would pay if you're not insured or else help with the co-pay. The Genentech Foundation would pay if your income for a single person was below roughly $100,000, and more if you're married. I found another source, the HealthWell Foundation that would pay for at least some of your co-pay if your income was below roughly $60-70 thousand for a single person, and more if you're married. These grants were for people with GCA to get Actemra. I just Googled Kevzara, and it looks like Kevzara Connect provides assistance for Kevzara.

I don't know if it was prednisone or Actemra, but my cholesterol went up more than yours, and I'm going to have to go on a statin. But it's worth it to me to get off of prednisone hopefully.

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Replies to "I didn't apply for financial assistance since my insurance paid for my Actemra, but I found..."

I was on Kevzara Connect for 8 months but at the end of 2024 I was cut off. I believe they cut off all straight Medicare patients and maybe Advantage as well. I qualified by income initially since they do a credit report. I'm glad to be off Kevzara for the moment and mainly put in a comment so others could have the information. It didn't make sense to be on 2 drugs with no real progress toward getting prednisone below 5 mg. Especially if I needed to add a statin which has more side effects. The doctor told me how much the high cholesterol was raising my risk of heart attack and stroke and it got my attention. My rheumatologist wants to see how I do without Kevzara and if I have to raise the prednisone significantly possibly get me on Actemra. After 7 weeks off Kevzara not much change.