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Living With Large-Fiber Neuropathy
Neuropathy | Last Active: 2 days ago | Replies (54)Comment receiving replies
Hi, bb0753 (@bb0753)
No, no PN sensations anywhere other than in my feet, and even there (my feet), I've no reportable numbness (even though two EMGs tell me I have some); the only symptom (or symptoms) I blame on PN is unsteady balance, which is worse at times, not so bad at others.
I am still taking EB-N5 (the medicinal food you refer to). I'm unable to say EB-N5 has "helped;" all I can say is that my PN has not progressed. Is that thanks to EB-N5? I don't know, nor does my neurologist. I'm employing a variation of the adage, "If it ain't broke, don't fix it," reasoning instead, "If it ain't got worse, keep doing what you're doing." 🙂
Ray (@ray666)
Replies to "Hi, bb0753 (@bb0753) No, no PN sensations anywhere other than in my feet, and even there..."
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Ray, Thanks for your reply. I very much agree, if it has not progressed then I would definitely keep doing what you are doing. I don't feel numbness either. In fact my feet are sensitive to the smallest piece of dirt and I can feel all temperatures etc. My feet are very stiff and skin feels like it is not flexible. I can't stand on one foot or walk toe to toe so balance is definitely off but I can still do daily step aerobics as long as I pay close attention. I do trip some when walking so have to be deliberate to push off well with my feet as I walk. The more I exercise the better I feel. Best wishes to you. Bonnie