Connect
Discussion
Comment receiving replies
Replies to "When the drug company called me to say my out of pocket yearly cost would be..."
Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (30)
Comment receiving replies
When the drug company called me to say my out of pocket yearly cost would be $16,000 they told me that there were programs that could help. I asked the woman to describe what was available and not one program would be of assistance to me. It felt like they were going through the motions of appearing to be helpful. Most were government programs with an upper limit of 2-3 times the poverty level, approx $26,000 to $39,000 for a single person. I'm not much above that, so $16,000 a year is not reasonable.
Replies to "When the drug company called me to say my out of pocket yearly cost would be..."
Connect
I didn't apply for financial assistance since my insurance paid for my Actemra, but I found a couple of private sources that would pay if you're not insured or else help with the co-pay. The Genentech Foundation would pay if your income for a single person was below roughly $100,000, and more if you're married. I found another source, the HealthWell Foundation that would pay for at least some of your co-pay if your income was below roughly $60-70 thousand for a single person, and more if you're married. These grants were for people with GCA to get Actemra. I just Googled Kevzara, and it looks like Kevzara Connect provides assistance for Kevzara.
I don't know if it was prednisone or Actemra, but my cholesterol went up more than yours, and I'm going to have to go on a statin. But it's worth it to me to get off of prednisone hopefully.