← Return to TNBC treatment needing confirmation: What is standard treatment?

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@drummergirl

Thank you, but we all go through a lot. I just wanted you to be sure that if something does not seem right, get second opinions, ask questions until you are satisfied. I learned later that there are two techniques to install a port and the one my Dr chose is the one more likely to puncture. You should not be worried about the port, as I understand this is a rare occurrence.
My tumor was 2.0cm, stage 2a, no spread. Mine probably should have simply been removed but they decided on chemo before surgery. Surgery was successful and I was declared “cancer free”, but I never feel free of it. Interesting to note that after genetic testing which my treating hospital declined to do, but Moffit recommended, I learned I had the ATM gene. I believe now that the protocol is that all TNBC patients should be tested. Good to know, as it affects the chemo choices made. I eat my antioxidants and do what I can. You might be interested in the MD Anderson study on statins and TNBC. I now take Lovastatin each day.
I am doing ok so far, but the concern never leaves me.
Very best to you.

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Replies to "Thank you, but we all go through a lot. I just wanted you to be sure..."

After being diagnosed in 2019 with TNBC at age 66. I too underwent genetic testing. I was negative for all of the common BC genes, but on the back page was a sentence regarding a VUS-variant of unknown significance. It was the ATM gene. I’ve asked my doctors about this but they’ve indicated that unless the testing company sends me a report with updated information, I don’t need to delve into it. My mom died of pancreatic cancer so this gene does concern me-not just for myself, but for my children and grandchildren. I know I cannot change this, but I’m the type of person the likes to be informed.

Best wishes too all,
Cindy