← Return to Is This a Safe Taper as Prescribed by my doctor?

Discussion
Comment receiving replies
@dadcue

"When you reduce to a lower level, if it only feels a bit more painful try and sit it out for a couple of weeks and take painkillers. That may be all that is needed as your adrenals start to work again. Always remember that it is not slow if it works ! Hope this is of some help."
----------------------------
I agree with this! However, if the adrenals aren't ready to start working again there is nothing you can do except wait until they do. Mostly you have to hope and stay on a low dose of Prednisone until the adrenals decide to work again.

I had to sit it out on 3 mg for 6 months until an endocrinologist said my cortisol level improved.
Then she thought it "might be safe" to discontinue prednisone. During my wait, she implored me not to increase my prednisone dose unless I talked to her first.

Since I didn't seem to need Prednisone for PMR anymore AND my cortisol level was good I was able to do a 3-2-1-zero countdown taper. It was like all the stars had to be aligned for successful discontinuation of Prednisone.

One star might have been misaligned. I needed Prednisone again after my first attempt to discontinue Prednisone. My second attempt was successful but my second launch window didn't happen until several months later.

In my opinion, tapering off Prednisone is a bit like rocket science!

Jump to this post


Replies to ""When you reduce to a lower level, if it only feels a bit more painful try..."

Yes it can take up to a year for the adrenals to start working again. Many people don't realise that the final bit of tapering can be hard, but if you keep increasing the pred when it gets hard you are just putting off the hard bit till later yet again. Oh if only we were all the same !