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Positive Evenity results
I had my DEXA scan a week ago after finishing Evenity just over a month ago. With my luck I was expecting little results. Luckily it was good! Lumbar spine went from -4.6 to -3.0 Right femoral neck from -2.9 to -2.2. All the ridiculous copays were worth it to have my spine improve that much. My new PCP (I moved 3 months ago) hadn’t gotten the report as of today, so I downloaded it from my patient portal and emailed it to her. I still have a crappy spine, but not nearly as crappy as it was. Just a tip, be persistent when you need something medical. The place I was originally referred to for the DEXA said they couldn’t get me in until mid August. Multiple calls later, I got an appointment elsewhere within a few days. When I hadn’t heard from my PCP a week after the scan I called them. I don’t know what’s next yet, rheumatologist was pushing Prolia partly because it’s once every 6 months instead of a daily pill, but I had no unmanageable side effects with alendronate and Prolia is an unknown. Thanks for reading!
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We all know the feelings of starting any bone medicine. When you say that your bone score was very low what is very low? Mine in the spine was -4.6. I took Evenity for 12 months. Now my DEXA is -3.3 and I am taking Prolia to gain more density for 3 injections. Then I will take Reclast to lock in
Hi Kristie2. My spine score started out at -5.0, Left Femoral neck -3.2, Right Femoral neck -3.7. in 2022. I went to an endocrinologist at the Mayo Clinic in Arizona and she recommended Tymlos, which my insurance refused even after she appealed it, so I went on Reclast. After Reclast, my spine score was -3.6, left neck -3.1 and right neck -3.5. Not knowing about this site and everything that has been discussed and being afraid to take Tymlos or Evenity, I opted for Reclast again. In 2024, my spine went back up to -4.0 but my left neck went down to -3.0 and right neck down to -3.4. After reading this blog I started Evenity 5 months ago and am hoping for more improvements. So far I have not fractured. I am really scared of Prolina after reading the comments on here, so I suppose I will take a third year of Reclast to lock in my gains from Evenity. Hopefully I have good gains. After that I am hoping to take a year off, but it’s so confusing to know what to do. I had no idea that taking these drugs was a lifetime commitment.
Thank you for sharing. I know exactly how you feel and all of us on this site do too. Yes -5 is the lowest I have heard of so far. Reclast doesn’t build bone so that doesn’t surprise me that your bone density went down. Hopefully with the Evenity you should see gains.
Your confusion is understandable - Western medicine and our societal habits haven't a clue how to function in support of our bones. We never walk carrying loads on our heads; all the societies that do NEVER experience osteoporosis; plus, we're not told in our youth what precautionary measures we could take to build our bones to a really great strength when we're young enough to do so. So, we suffer in our older years for all these lacks. Here we are adrift on our n"star!"
My endocrinologist says I can get another DEXA a year after my previous one, so that would be this June. He said he’s usually able to persuade insurance to cover it as it’s more a diagnostic than routine screening. I hope that works, it’s ridiculous waiting 2 years to find out whether treatment is working or not.
I have my second Prolia injection in a couple of weeks, had no major side effects with the first. I was told the same, that it could continue to build my bone. 1 or 2 more after that and then go to Reclast.
The only reason my PCP who diagnosed me at 45 with osteoporosis could think of for me getting it earlier than normal was my anorexia as a teen. Definitely agree with learning to take better care of your bones when young.
My 2nd Prolia injection is also in a few weeks. The only problem I faced was a low calcium level which Prolia is known to do. I have increased my calcium intake and it was fine. They always check your calcium level before they give u the injection and if it is low they won’t let you get it.
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