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Positive Evenity results

Osteoporosis & Bone Health | Last Active: Mar 16 2:26pm | Replies (109)

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Hi Kristie2. My spine score started out at -5.0, Left Femoral neck -3.2, Right Femoral neck -3.7. in 2022. I went to an endocrinologist at the Mayo Clinic in Arizona and she recommended Tymlos, which my insurance refused even after she appealed it, so I went on Reclast. After Reclast, my spine score was -3.6, left neck -3.1 and right neck -3.5. Not knowing about this site and everything that has been discussed and being afraid to take Tymlos or Evenity, I opted for Reclast again. In 2024, my spine went back up to -4.0 but my left neck went down to -3.0 and right neck down to -3.4. After reading this blog I started Evenity 5 months ago and am hoping for more improvements. So far I have not fractured. I am really scared of Prolina after reading the comments on here, so I suppose I will take a third year of Reclast to lock in my gains from Evenity. Hopefully I have good gains. After that I am hoping to take a year off, but it’s so confusing to know what to do. I had no idea that taking these drugs was a lifetime commitment.

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Replies to "Hi Kristie2. My spine score started out at -5.0, Left Femoral neck -3.2, Right Femoral neck..."

Thank you for sharing. I know exactly how you feel and all of us on this site do too. Yes -5 is the lowest I have heard of so far. Reclast doesn’t build bone so that doesn’t surprise me that your bone density went down. Hopefully with the Evenity you should see gains.

Your confusion is understandable - Western medicine and our societal habits haven't a clue how to function in support of our bones. We never walk carrying loads on our heads; all the societies that do NEVER experience osteoporosis; plus, we're not told in our youth what precautionary measures we could take to build our bones to a really great strength when we're young enough to do so. So, we suffer in our older years for all these lacks. Here we are adrift on our n"star!"

Before I started Tymlos two years ago the baseline DEXA in Nov. 2022 showed total spine of -5.1. Yikes! After 18 months on Tymlos the same facility showed -3 something. I knew it could not be right, so I had another DEXA by a facility (Solis) I went to in June 2022 and it showed -4.1. That sounded more believable. So, I have learned to be somewhat skeptical about DEXA scans. The literature says to have them at the same facility and using the same machine. There is also the variation in who reads the scan. Ideally the same person would read the next scan, but that is not feasible. I plan to get another DEXA from Solis before I start Evenity, even if insurance will not pay for it and I have to. It is certainly a complicated process, trying to increase the bone density we have and/or preserve it. I am 74 and able to continue to garden/landscape my property, so I am still active. I am careful not to BLT--bend, lift or twist. Rather than bend over, I get on my knees to load the washer/dryer, etc. I'm also careful getting into and out of bed by lowering myself on my side to my elbows and slowly down. To change position I roll, not lifting myself. There are many ways I have changed how I do things, to spare my spine. I have had several vertebral fractures that I was not aware of until I slipped on the ice in 2021 and had an x-ray which showed the prior fractures. They can be silent and painless. When I heard the word fracture, I pictured a break, like breaking your arm, but I learned that vertebral fractures are actually when the vertebra collapses. On X-ray you can see this because the ones that are fractured are narrower than the others.