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@donnie46

Am new to this site. Grateful to read others understand. Had pneumonia in 2019 and exhaustion & other symptoms remain. Heart and lung tests show both are fine. Family & I are convinced I had Covid and still have Long Covid. Doctors are reluctant to add this diagnosis to my record. Fatigue, minimal sense of taste & and other symptoms remain and complicated by simultaneous diagnosis of rare incurable blood cancer requiring phlebotomy. Joined this site after reading about the person keeping a data sheet of good & bad days….exactly my situation. Do not know anyone with Long Covid so am grateful to belong to this understanding group. THANK YOU ALL!!!

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Replies to "Am new to this site. Grateful to read others understand. Had pneumonia in 2019 and exhaustion..."

Yes, I believe I had Covid in 2019. I felt awful, extreme fatigue
I went to the doctor and the treated like the flu as expected
The word Covid had not entered our lives yet. She gave antibiotics and steroids. I had to go back 3 times for refills
She was beginning to be reluctant to prescribing anyore meds.
In 2021 I got the Covid shot and developed Covid 3 days later. I tested positive for 3 weeks and have long Covid since.

I had Covid Jan 2020. (East Coast)
Developed into Ling Covid, then Essential Thrombocytosis and POTS.

I'm 3 1/2 years no taste/smell, brain fog, fatigue, forgetfulness. The doctors could care less. I've only been told we don't know. I do not personally know anyone in this condition. It is very depressing and discouraging. I understand where you are coming from.

I have Long Covid since 2023 after Covid infection requiring hospitalization for 5 days for treatment with Remdesivir
Only symptoms at the time were low 02 sat and difficulty breathing
Looking back was also diagnosed with "viral pneumonia" according to ER doctor for worst
cough and tight chest pain in November 2021, am pretty sure it was actually covid then
Was very healthy prior to and life has not been the same since Covid and/or vaccine
Have 2 auto immune diseases and GI and neuro issues since covid, new food allergies recently
Many providers initially skeptical of Long Covid possibility
and many others not well informed about longterm Covid impacts on the body
It has been a very difficult experience on so many levels
All the best to you and hope better health can be attained!