Newly diagnosed BARRETTS esophagus

Posted by bqt @bqt, Dec 14, 2024

I am sooo happy to find this forum. I am really sad about my diagnosis two weeks ago. My understanding is that while erosive esophagitis can be reversed — Barrett’s cannot. I am extra fearful because I witnessed my younger brother die of stomach cancer in his mid 30s (non drinker, non smoker, healthy and fit while eating organic and having a six pack abs etc — when he complained of stomach pain docs did not scope because of his age and he was treated with protonix for what they aaaimed was an ulcer. A few months later after liver pain he was diagnosed with stomach cancer and he died 3 1/2 months later).

Sooo … I’ll always have post traumatic stress from my reflux lead me to get scoped (although the docs don’t think this is related to my family history). I was recommended to have another endoscopy in 3-6 months for more extensive biopsies . So far it’s non dysplasia Barrett’s.

I’m scared but have gone full speed revision of my diet , habits, sleep at incline …

I lost my job two weeks ago (but start a new one soon luckily). I’ve been spending the last two weeks scouring the net and YouTube videos and have found a TON of great info. But I love seeing other people that have experience living with Barrett’s.

I am scared

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@rsedlock1958

I take omezprazole, 40 mgs, twice a day.

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Me too.

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I was diagnosed with Barrett’s several years ago. After a few years I had 3 RFA’s (Radio Frequency Ablation) done. They basically burn and scrape the brown tissue away at your esophagus and stomach connection then new pink healthy tissue grows back. I’m not sure about it being a cure for Barrett’s but so far so good years after this was done. Gerd they say causes the burned “ brown” tissue I was told. Which can maybe become cancerous. I take 40mg of Omeprazole every morning which helps with the acid reflux. Good luck and I hope you make out okay 👍 oh and I must say whenever I went to bed right after eating dinner or on a full stomach the “gerd” was the worst!!!! Wait AA couple hours then go to bed.

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@bqt

DOES ANYONE STILL EXPERIENCE REFKUX? 🥹🥹🥹since my diagnosis I have made all of the changes (stop eating at 5pm, practically sitting inside sleeping, PPI, strict diet) and still experiencing reflux SOME nights (versus every night— before).. it’s not as severe but still about one out of 3 or 4 nights. I wake up soo sad 😔 has anyone who has had long term Barrett’s control, still felt reflux at times?

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Sucralfate liquid coats your esophagus and stomach from the acid. It’s a prescription.

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@diannesmcneill

Sucralfate liquid coats your esophagus and stomach from the acid. It’s a prescription.

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I am 4 months in with a gastritis w hyperplasia. Acid reflux and Barrett’s diagnosis. I take two 20 mg Nexium OTC twice daily, baclofen 5m 3 times during day and one hour before bedtime. The biggie is the sucralfate liquid 20ml that I use 3 times a day before meals and at bedtime. In the beginning I had to take an extra dose of sucralfate in middle of night. Took a good month to start seeing results. At two months I was seeing better results. If I take less Nexium I feel burning. I also do everything regarding eating. I have the foam lift triangle pillow to raise my upper body. One has to get serious with everything!

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@spiketopks1

dr put me 20ml generic nexium once a day. just started yesterday. keep your fingers crossed it works

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Read about Barrett’s and reflux treatments on line.

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@rsedlock1958

I take omezprazole, 40 mgs, twice a day.

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Research 3 things to treat Barrett’s. Ppi, sucralfate liquid that coats esophagus and stomach, and folate.

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