← Return to Chronic Sensorimotor Axonal Polyneuropathy and CMTuagnised with Chroni

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@mjpm2406

Sorry my response took a long time. Not only am I suffering from Chronic Sensorimotor Axsonal PN, CMT2, and CMT4B but I've had MDS/MPN/MF (an extremely rare blood cancer overlap disease) for 7 years. The MPN component mutated to Polycthemia Vera which requires frequent phlebotomy treatments. Two months ago the MDS component mutated to CLL/SLL so things are getting tough. I use a cane to get around because my balance is awful. I'm allergic to lyrical and Gabapentine (I experienced double vision) so I can't take any nerve medication. For my blood cancer I take Hydrea, Eloquis and a baby aspirin. Not sure if the daily chemo regime of 1,500 mg of Hydrea contributes to my PN but I suspect it may be aggravating things. Anyone experiencing PN symptoms after being on chemo therapy?

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Replies to "Sorry my response took a long time. Not only am I suffering from Chronic Sensorimotor Axsonal..."

My goodness, thanks for responding. You certainly have a full plate to deal with. Sorry to see you have some complications. Hope you get some input from others on chemo who have PN. I wish I could offer something helpful. Sending hugs and prayers.