← Return to Sphincter of Oddi Dysfunction: What helps you?

Discussion
Virginia Franzen avatar

Sphincter of Oddi Dysfunction: What helps you?

Pancreatic Disorders | Last Active: Jan 24 4:29pm | Replies (47)

Comment receiving replies
Profile picture for amelianazapa @amelianazapa

After my diagnosis I found a commenter in a forum claiming to be a doctor ask if anyone had checked their thiamine levels (B1). The commenter cited something about muscle function and thiamine. I didn't get mine checked but started a daily thiamine supplement and while I occasional feel tightness in the area I have had no episodes since.
For me an episode meant hours to days of extreme pain and vomiting leading to ER visits for potassium pumps and rehydration.
Avoiding super fatty meals, eating smaller portions than most people and cutting most all processed or prepackaged foods from my diet I think also helps.

Jump to this post


Replies to "After my diagnosis I found a commenter in a forum claiming to be a doctor ask..."

I guess I should also share that maintenance for when an episode is coming on is an NSAID, ibuprofen or acetaminophen whichever your preference, Zofran for the nausea, Mylanta and sitting on the shower floor with very hot water pounding on my back.