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Myelomalacia: Let's connect

Spine Health | Last Active: May 11 2:22pm | Replies (85)

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@sarahmargaret

Thanks Jennifer
I trust the neurosurgeon and very proud of him as he wrote to other neurologists at same hospital / colleagues and pointed out.
There is spinal compression etc there is history of falling etc . As someone posted sometimes they don’t like to go against others opinions.

I’ve also had a spinal fluid leak where compression was it’s like a slit on the scan neurosurgeon confirmed spinal fluid leak but not too significant ( but the slit that maybe the Myelmacia ( spelling ) I would like to re name it as …… as it is so difficult. It’s nice we can share on this site. The gent that posted with cane I’m glad you’re still having a bit of benefit with therapy keep fighting it.
I have no joy unless I do squat weights . If we stop fighting it we lose more function

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Replies to "Thanks Jennifer I trust the neurosurgeon and very proud of him as he wrote to other..."

@sarahmargaret I agree. Do everything you can to maintain hope and joy in your life. We're here for you to help share your journey so you are not alone.