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Newly diagnosed BARRETTS esophagus
I am sooo happy to find this forum. I am really sad about my diagnosis two weeks ago. My understanding is that while erosive esophagitis can be reversed — Barrett’s cannot. I am extra fearful because I witnessed my younger brother die of stomach cancer in his mid 30s (non drinker, non smoker, healthy and fit while eating organic and having a six pack abs etc — when he complained of stomach pain docs did not scope because of his age and he was treated with protonix for what they aaaimed was an ulcer. A few months later after liver pain he was diagnosed with stomach cancer and he died 3 1/2 months later).
Sooo … I’ll always have post traumatic stress from my reflux lead me to get scoped (although the docs don’t think this is related to my family history). I was recommended to have another endoscopy in 3-6 months for more extensive biopsies . So far it’s non dysplasia Barrett’s.
I’m scared but have gone full speed revision of my diet , habits, sleep at incline …
I lost my job two weeks ago (but start a new one soon luckily). I’ve been spending the last two weeks scouring the net and YouTube videos and have found a TON of great info. But I love seeing other people that have experience living with Barrett’s.
I am scared
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No dysplasia on biopsy report.
I was diagnosed with Barrett's as well...so i understand the scary part. I wasnt expecting that I guess? Ive had horrible reflux/gerd for years and been on many mediations for it..They work for a time than they dont. Does anyone else throw up with this? That has been happening the last several years for me but couldnt figure out what was going on. Came to my gastro here at home and she diagnosed barretts. we changed meds and hopefully that will help. good luck with yours and I hope that you feel better soon...Kim
What meds are you now taking and dosage for your reflux and Barrett’s?
What meds are you taking and dosage for reflux and barretts
I take omezprazole, 40 mgs, twice a day.
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2 ReactionsWhere are you having procedures done at?
I live in Massachusetts. I have my procedures done at UMass hospital in Worcester.
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1 Reactiondr put me 20ml generic nexium once a day. just started yesterday. keep your fingers crossed it works
My specialist put me on a ppi 40 mg twice daily, sucralfate liquid 20 ml 1 hr before meals and at bedtime and baclofen 5 mg 3 times during day and bedtime. I first took pantapazole ppi but got swollen ankles and feet. Changed to Prilosec OTC got nasal drainage and annoying cough. Now taking the ppi Nexium OTC two 20 mg twice daily plus the sucralfate and baclofen. In reading about Reflux and Barrett’s I have added Premier Research Labs Phylo Methylate 2 daily which is activated B vitamins, folate (5-MTHF) and Choline and vitamin D’3. I read several articles about the things that can help Barrett’s and that’s what I added with Doctors approval. I also follow all the guidelines online about eating and when and how much. I only drink water. My doctors agrees with my adding. I stopped sleeping on right side as that makes reflux worse. I ordered the triangle wedge pillow to raise upper body when I sleep. You might need some additional medical guidance. I had no metal Kasia with the Barrett’s. My specialist retired. I was diagnosed in Oct 2024. Took two months of medication to help my burning mouth. During the day if I get burning I chew a pepsid complete which relieves burning pretty quickly no more than twice daily taking pepsid complete. First 30 days after esophagus scope and reflux and Barrett’s scope I only ate soft foods and soup broths which felt the best going down my esophagus. I also was diagnosed with gastritis w hyperplasia during esophagus scope. I don’t think your doctor is doing enough for your Barrett’s. I also read on line that Barrett’s is treated with high dose ppi of 40 mg twice daily. Read about it and talk to your doctor. Its a long term treatment lifestyle. I did read about one doctor who did not use ppi in her treatment for a patient with bone loss because poi’s have side effects like that. That Dr proscribed higher doses of pepsid complete 3 times daily and at bedtime. I am not recommending a treatment for you. I am only telling you what my doctor prescribed and what I read about that is suppose to treat Barrett’s with goal of healing Barrett’s if at all possible.
I have no meta plasma with my newly diagnosed reflux and Barrett’s.