Ray, have you experienced any symptoms in your arms. I also have large fiber diagnosis that was just in my feet and lower legs. Same symptoms as you with no pain. Recently I feel some tingling in my arms mostly my right arm. Also are you still taking the medical food that your doctor prescribed (i forgot the exact name) ? If so do you feel it is beneficial?

I ask because I came at it the other way, with negative EMG and then (very) positive small fiber biopsy. No symptoms other then loss of balance. I had Sjogren's Disease (determined by antibodies) and it is known to cause SFN. However, I should have had pain or numbness or something but nada. A second neurologist did a MRI on my Lumbar spine and (I guess) saw the stenosis and diagnosed the Large Fiber. Took several years and several drs. to figure it out. I'm taking IvIg and Retuxan and will most likely the rest of my life. I'm 78 so could be a while. Some progress on the Sjogren's, 'though.

Hi Ray, you have described the same symptoms that I have! Unsteadiness on standing, instability while walking, I am good once I get started first one to three steps are with much caution.Balance is my chief complaint. I do have some burning and tingling in thighs and feet, mainly at night. A walking stick is a must when in a crowd. Cannot walk on uneven surfaces, grass, beach ( which I live close to, so sad) pebbles, brick patios, etc. I take 300 mg of gabapentin and lots of supplements. R Alpha Li[poic Acid and Benfotiamine, just 2 that I believe has helped. I do exercise 3x a week also a big help. In summer swimming is my passion, I swim everyday when weather permits. I am 81 and being active is key to this evil disease. Keep pushing is the answer!!