← Return to 3 yrs in remission H & N cancer - Experiencing ear discomfort

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@cmickelson15

Last Movember I had a tonsillectomy and neck dissection for HPV+ cancer. Ear pain was the symptom that lead to diagnosis. Urgent care, two dentists and an ENT misdiagnosed it as TMJ. I went to a PT who specializes in TMJ and he said he does not see ear pain like mine in his cases and told me to pursue it harder. I went to a different ENT who expressed her view as “when I see persistent ear pain and can’t see where it’s coming from, I go find the cancer.”
If I experience ear pain again, I will doggedly pursue it and not let any provider convince me otherwise. If I had done that, or seen the other ENT first, I’d have diagnosed my cancer 8 months earlier.
Good luck!

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Replies to "Last Movember I had a tonsillectomy and neck dissection for HPV+ cancer. Ear pain was the..."

Did the pain hurt or was it discomfort? I ask that because mine isn’t really pain. My ear just feels full. Not much pain at all. Also, did you have any scans done during that time of uncertainty? My first go around, multiple PET scans did not reveal the primary tumor. They had to do exploratory surgery (neck dissection) that lasted 9 1/2 hours.