Reading this whole gamut of comments, I certainly feel much the same way! About a year before COVID reared its ugly head, I was diagnosed with Parkinson’s Disease!! At first, my family was helpful and supportive! At that time, luckily, I was able to walk and move ok, albeit some stiffness, and jerky movements! We have 2 Doctor’s, a Nurse Practitioner, and a nurse (BSN), in our immediate family, so I got s lot of support. Once COVID hit, everything changed, very rapidly! My Son-In-Law, a Hospitalist Physician was assigned to the COVID ward, and so we hardly saw much of him, for several years. We had to keep our distance! My wife has metabolic system disorder, that affects the heart, lungs, kidneys etc., so we were isolated much of the time, during COVID, and we had to fend for ourselves much of the time! Since COVID infections have gotten under control, and we, faithfully, took all the shots and boosters required, we are fairly well protected! Ironically though, my getting help as my Parkinson’s has been progressing, has not materialized much. Seemingly, apathy and self-centeredness, has become the norm! So much has changed. I have great difficulty navigating steps, and my walking has slowed quite a bit, in the last few years. I lose my balance easily, and have completely fallen down, three times, since fall! We are having a brutal winter this year, and the accumulated snow and ice, up here, in Michigan, makes for uneven walking surfaces! The huge political upheaval’s that are changing our country going forward, are intimidating to me! So, I guess we are all having struggles, lately!’Good luck’ and hoping for better times!!
To @foundryrat743
My husband has Parkinson’s too and due to my uncontrolled anxiety, he is my caregiver instead of the other way around. His voice has gotten very soft, he chokes on his food and even water, and his gait is off. He has trouble getting up from chairs, etc. But, somehow, this wonderful man drives me to doctors’ appointments (when I am able to leave the house), shops, does the laundry, prepares food, etc. If the medical providers could prescribe meds that work for me, then I could take care of him. It’s not their fault that my body rejects everything thrown at it. I have been trying to walk outside a little bit and my neighbors must think I am drunk because I am so wobbly.