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Have you experienced Keppra-related diarrhea?

Epilepsy & Seizures | Last Active: 3 days ago | Replies (18)

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@santosha

Hi @hippele
Thank God you are not having other side effects with Keppra!!!
Indeed, the lowest pill of Keppra is 250 mg. I am now on the oral version of Keppra, in which my doctor can reduce my dosage below 250 mg and change it more easily.
I started on Keppra last December at 500 mg while I was at the ER. I also had much diarrhea alternated with constipation and many other side-effects. My doctor has been reducing my dosage little by little and with all care and safety. This last weekend I repeated my EEG so that he can evaluate with safety if it is possible to reduce even more my dosage. He has been doing a great fine-tuning process.
As your diarrhea is recurrent it is important to see with your doctor what can be done to reduce this symptom. As we know diarrhea can cause dehydration and nutritional deficiencies. Perhaps through a specific diet recommended by your doctor, you could reduce this diarrhea and correct eventual nutritional deficiencies observed in blood exams through supplements.
@hippele please do not reduce those medications by yourself, this can be very dangerous. Always do it together with a doctor. If you are not very satisfied with your current doctor, check for a second opinion, preferably with an epileptologist rather than just a neurologist. The Epilepsy Foundation has a great 24/7 helpline and can help you to find an epileptologist in your region. Here is the link: https://www.epilepsy.com/247-helpline.
Stay safe!
Chris (@santosha)

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Replies to "Hi @hippele Thank God you are not having other side effects with Keppra!!! Indeed, the lowest..."

My EEG was negative after my seizure and just had a followup ordered from my doctor which was also negative. I get diarrhea first thing in morning and sometimes twice within a hour or two. So, I am retaining all the nutrients over a 24hr period so I am not worried about nutritional deficiencies. There is a tremendous amount not known about seizures. Doctors can only throw darts and hope that a "pill" can help you. And of course, every pill has a poison in it. The patient has to decide if the advantages outweigh the disadvantages (poison). In my case, having diarrhea and no other side effects is acceptable to me at this point but would still like to lessen my dosage and if no effect, eventually get off the pills with my doctors blessing. God Bless!!