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Invisible illness how do you cope?

Autoimmune Diseases | Last Active: 6 days ago | Replies (30)

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@catartist

Thanks for sharing! What a journey. Yes- that’s why I have done the genetic testing - for my 3 and 8 grands! Tho not much you can do about where I am - very like you actually … and it’s the ligaments and tendons as well as muscles that are atrophying . Partially due to RA and steroid dependence - but I may learn what to expect better too - good and not so good? Keep on fighting - PT!

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Replies to "Thanks for sharing! What a journey. Yes- that’s why I have done the genetic testing -..."

My Rheumatologist recommended Acthar Gel. It stimulates your adrenal gland to produce natural cortisone when it senses inflammation. I hated prednisone due to side effects. I've been on a once a week shot for 6 weeks now and I am noticing a big improvement. My flares are milder and my pain level has dropped by 3-4 points. I'm nauseated the day I inject but no other side effects. You might want to discuss with your Dr❣️