You mentioned your dad had low sodium. How did they turn it around? Did he take medication? This just happened to my husband and am wondering what the options are.
More salt in food, or sometimes they ask the patient to take one or two saline tablets each day. But here's what is often missed, and what I insisted upon when the kindly physician came to my Dad's flat to see him for the first time in the condition where he had had his worst fall: MONITORING!!
Look at it this way, everyone reading: think of the rapid evolution of an infant to toddler status and on until they start school. It's very rapid. The same thing happens in reverse at the other end of life. You 'unwind' quickly. This necessarily means that changes, dangerous ones, can happen on top of one another inside of weeks. So, if a body can't hang onto sodium, or magnesium, or potassium....shouldn't that be taken into account for a daily remedy? And how would you know how much, other than on a one-time physician's visit where he says, 'Take two of these each day?' How would HE ever know if two were too much or too little? So, an aged person needs more monitoring, more frequently, for the conditions for which they have been chronically treated. And yes, it is now in place for my soon-to-be 95 year old dad, stooped as he is, but still sharp and enjoying life. We'd like him to be comfortable and well.
I live in upstate New York in a two-story home. My husband has a variety of physical ailments that will eventually make stairs impossible, and I've got a deep history of dementia in the family. I'm a planner by nature, while my husband likes to live life as it comes. We're both retired, and financially comfortable enough to have choices, but at some risk of outliving our resources.
Early last summer, we finally realized that we are not going to be able to age in place to the end -- our home is just not physically conducive to this. So I plunged in.
It's important to realize that every option has risks and opportunities. You can't get rid of the risks, although you can pick your exposure and try to make them as unlikely as you can. And by setting your priorities, you can make the best of your opportunities.
So, here's where we landed:
-- I've been gradually giving stuff away through our local community Buy Nothing FB page. It started with practical items we haven't used in years, or that I rediscovered by scouring the entire house to look at shelves, cabinets, closets, etc that I haven't been paying attention to. (Wow, a lot of things I'd forgotten we owned.) Eventually moved into sentimental stuff, like most of my father's sculptures. It helped to do this gradually, which let me get my head around downsizing.
-- Eventually, I decided to set up a room for stuff to keep. The goal was to make it all visible on (inexpensive plastic) shelves and also use the room very practically as a pantry, place to sort laundry, a functioning location that I was in and out of a lot. This helped me get rid of more stuff, as I realized what things I thought I would keep weren't actually going to be needed or wanted if we moved. Still working on this, because it will eventually help me decide how much storage we will actually need. This is helping me actually live in a smaller footprint right now.
-- I did not touch my husband's collections. However, over time, as he watched me do this, he started conversations about what to do with the collections that are meaningful to him. We've agreed that offsite storage is an option if he hasn't downsized his possessions by the time we move, but that he is going to give it his best shot.
-- I've been an executor twice, and yup, most of it gets thrown out in the end. It helped me start looking at our possessions through that lens. If no one is going to want it when we are gone, then why not keep only the items that will be useful, or that we cherish because we see or touch it every day?
-- One of my to-do's is going to be creating a collage (using a poster frame) of meaningful photos that could move from retirement home to assisted living to nursing home, if necessary. Most of the remaining pictures will be thrown away.
-- The more places we visited, and the more research I did, the more we refined what we were looking for. What we first thought we were going to want evolved based on experience. We spoke with our local Office of the Aging, we tried to find friends who had friends who had experience with places, we figured out that the vibe and resident culture really mattered to us, we started to understand what turned us off and turned us on. I got to know all the sales people, and compared all the contracts, and ultimately requested a copy of the resident's manual (when they say they allow pets, for example, what exactly does that mean you can/can't/must do if you have a pet, and what kind of pets?).
-- We looked into options that would give us quality of life for as long as we can, would eliminate the need to personally hire-and-fire aids or nurses (because we've eventually not going to be capable of doing that, and we wouldn't enjoy it anyway), and would make this most likely to be our last major move. This means a community with onsite cottage homes, apartments, assisted living, memory care, nursing home. It exposes us to one big financial risk, which is bankruptcy or sale of the community to someone who runs it into the ground, so we've been very picky. It also exposes us to one big social/psychological/emotional risk, which is an incompatible community, so we've been very picky there, too. It does give us the opportunity to age in a community where we can make new friends, and where one of us can move to a higher level of care and be easily visited by the other one. It also gives us lots of independence in a cottage and our own space for as long as we can make that work.
-- We're waitlisted now for three options in that community. The one we would prefer has a 3-4 year expected wait time, while the two others have shorter times, in case we need to move sooner than we hope to have to.
-- I'll be interviewing a couple of move managers and a couple of real estate agents this winter or spring, just to get a handle on possible costs, and how much work we want to do ourselves (probably not much, because neither of us are physically able to do a lot of that any more, and we don't have kids).
Basically, I turned it into a project, and by doing that, I got increasingly comfortable with the whole idea. It started out traumatizing, and now I'm actually kind of looking forward to it.
This is kind of an extreme. (It's one step short of an actual, legally chartered CCRC, which we considered but eventually rejected.) We could much more easily just sold the house and moved into an apartment somewhere, which is a perfectly viable way to go. Just wasn't our choice.
I live in upstate New York in a two-story home. My husband has a variety of physical ailments that will eventually make stairs impossible, and I've got a deep history of dementia in the family. I'm a planner by nature, while my husband likes to live life as it comes. We're both retired, and financially comfortable enough to have choices, but at some risk of outliving our resources.
Early last summer, we finally realized that we are not going to be able to age in place to the end -- our home is just not physically conducive to this. So I plunged in.
It's important to realize that every option has risks and opportunities. You can't get rid of the risks, although you can pick your exposure and try to make them as unlikely as you can. And by setting your priorities, you can make the best of your opportunities.
So, here's where we landed:
-- I've been gradually giving stuff away through our local community Buy Nothing FB page. It started with practical items we haven't used in years, or that I rediscovered by scouring the entire house to look at shelves, cabinets, closets, etc that I haven't been paying attention to. (Wow, a lot of things I'd forgotten we owned.) Eventually moved into sentimental stuff, like most of my father's sculptures. It helped to do this gradually, which let me get my head around downsizing.
-- Eventually, I decided to set up a room for stuff to keep. The goal was to make it all visible on (inexpensive plastic) shelves and also use the room very practically as a pantry, place to sort laundry, a functioning location that I was in and out of a lot. This helped me get rid of more stuff, as I realized what things I thought I would keep weren't actually going to be needed or wanted if we moved. Still working on this, because it will eventually help me decide how much storage we will actually need. This is helping me actually live in a smaller footprint right now.
-- I did not touch my husband's collections. However, over time, as he watched me do this, he started conversations about what to do with the collections that are meaningful to him. We've agreed that offsite storage is an option if he hasn't downsized his possessions by the time we move, but that he is going to give it his best shot.
-- I've been an executor twice, and yup, most of it gets thrown out in the end. It helped me start looking at our possessions through that lens. If no one is going to want it when we are gone, then why not keep only the items that will be useful, or that we cherish because we see or touch it every day?
-- One of my to-do's is going to be creating a collage (using a poster frame) of meaningful photos that could move from retirement home to assisted living to nursing home, if necessary. Most of the remaining pictures will be thrown away.
-- The more places we visited, and the more research I did, the more we refined what we were looking for. What we first thought we were going to want evolved based on experience. We spoke with our local Office of the Aging, we tried to find friends who had friends who had experience with places, we figured out that the vibe and resident culture really mattered to us, we started to understand what turned us off and turned us on. I got to know all the sales people, and compared all the contracts, and ultimately requested a copy of the resident's manual (when they say they allow pets, for example, what exactly does that mean you can/can't/must do if you have a pet, and what kind of pets?).
-- We looked into options that would give us quality of life for as long as we can, would eliminate the need to personally hire-and-fire aids or nurses (because we've eventually not going to be capable of doing that, and we wouldn't enjoy it anyway), and would make this most likely to be our last major move. This means a community with onsite cottage homes, apartments, assisted living, memory care, nursing home. It exposes us to one big financial risk, which is bankruptcy or sale of the community to someone who runs it into the ground, so we've been very picky. It also exposes us to one big social/psychological/emotional risk, which is an incompatible community, so we've been very picky there, too. It does give us the opportunity to age in a community where we can make new friends, and where one of us can move to a higher level of care and be easily visited by the other one. It also gives us lots of independence in a cottage and our own space for as long as we can make that work.
-- We're waitlisted now for three options in that community. The one we would prefer has a 3-4 year expected wait time, while the two others have shorter times, in case we need to move sooner than we hope to have to.
-- I'll be interviewing a couple of move managers and a couple of real estate agents this winter or spring, just to get a handle on possible costs, and how much work we want to do ourselves (probably not much, because neither of us are physically able to do a lot of that any more, and we don't have kids).
Basically, I turned it into a project, and by doing that, I got increasingly comfortable with the whole idea. It started out traumatizing, and now I'm actually kind of looking forward to it.
This is kind of an extreme. (It's one step short of an actual, legally chartered CCRC, which we considered but eventually rejected.) We could much more easily just sold the house and moved into an apartment somewhere, which is a perfectly viable way to go. Just wasn't our choice.
You made me feel good about my choices. I want to move to independent living while I can. But waitlists are long.
This does give me time to digest myself of all the stuff i don’t need. Still getting rid of stuff from when wife passed last year ;after 8 years of caring for her. Now need to start on my stuff.
Thanks for putting all in writing!
You made me feel good about my choices. I want to move to independent living while I can. But waitlists are long.
This does give me time to digest myself of all the stuff i don’t need. Still getting rid of stuff from when wife passed last year ;after 8 years of caring for her. Now need to start on my stuff.
Thanks for putting all in writing!
We solved the waitlist problem this way: we have a first, second, and third choice type of unit at the community we are interested in. Each has its own waitlist, with the unit we most prefer having the longest waitlist. We're now on all three. They have a two-strikes rule, meaning that they will let us say "no" twice, and then remove us from that particular list. This means, essentially, that we are most likely to be offered our third, second, and first choice in that order, so in each case, we can decide how much longer we want to wait when offered a unit. If our health declines faster, or we just want to get on with it, we can move earlier by being less fussy.
Not every facility works like that, but if you can find a way to get on a mix of shorter and longer lists, then you have an on-ramp if and when you need one.
You mentioned your dad had low sodium. How did they turn it around? Did he take medication? This just happened to my husband and am wondering what the options are.
Somehow this just appeared in my notifications. Not sure why so late...sorry.
They have him tablets, and he mixes his glasses of water, about three a day, plus tea, etc, with some salted tomato juice to make the water more appealing.
Your husband will need monitoring. It's not enough for him to take sodium tablets in perpetuity and not know if his blood pressure rises as a result, or if he's getting too little. I would urge you to ask for a two-month follow-up, and than another at six months just to keep tabs on his levels.
Somehow this just appeared in my notifications. Not sure why so late...sorry.
They have him tablets, and he mixes his glasses of water, about three a day, plus tea, etc, with some salted tomato juice to make the water more appealing.
Your husband will need monitoring. It's not enough for him to take sodium tablets in perpetuity and not know if his blood pressure rises as a result, or if he's getting too little. I would urge you to ask for a two-month follow-up, and than another at six months just to keep tabs on his levels.
Thanks for your note. The 1 gm sodium tablets did not work, he ended up in the ER and hospital again. They brought his sodium levels up, and monitored him and noticed them going down again. He has been prescribed Tolvaptan two days a week. We’ll take blood test weekly for a while to see which way his levels go.
Auctions - get help. Tag sales - get help - work but fun too. Goodwill ( don’t take many sofas or chair type contributions; ).
Habitat for Humanity. ( they pick up). Maybe church or rehab centers - for patient homes. It’s a lot! Stressful too - but freeing in end!
Auctions - get help. Tag sales - get help - work but fun too. Goodwill ( don’t take many sofas or chair type contributions; ).
Habitat for Humanity. ( they pick up). Maybe church or rehab centers - for patient homes. It’s a lot! Stressful too - but freeing in end!
Just had a consultation with a "move manager", who does lots local moves from larger homes to smaller homes and various flavors of retirement communities. This is the sort of service that sprouts locally and is often just the owner plus another couple of people. Just FYI, she describes her services as:
• Guide you in deciding what to keep, gift, sell or donate.
• Establish a floor plan for your new space
• Assist with the packing, sale and donation of items.
• Help prepare your home to sell: de-clutter, clean, repair and stage for a faster sale.
• Enhance curb appeal with external cleaning or upgrades.
• Refer you to movers, real estate agents and other professionals.
• Unpack and set up your new home.
• Hold Estate or Moving Sale if needed
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More salt in food, or sometimes they ask the patient to take one or two saline tablets each day. But here's what is often missed, and what I insisted upon when the kindly physician came to my Dad's flat to see him for the first time in the condition where he had had his worst fall: MONITORING!!
Look at it this way, everyone reading: think of the rapid evolution of an infant to toddler status and on until they start school. It's very rapid. The same thing happens in reverse at the other end of life. You 'unwind' quickly. This necessarily means that changes, dangerous ones, can happen on top of one another inside of weeks. So, if a body can't hang onto sodium, or magnesium, or potassium....shouldn't that be taken into account for a daily remedy? And how would you know how much, other than on a one-time physician's visit where he says, 'Take two of these each day?' How would HE ever know if two were too much or too little? So, an aged person needs more monitoring, more frequently, for the conditions for which they have been chronically treated. And yes, it is now in place for my soon-to-be 95 year old dad, stooped as he is, but still sharp and enjoying life. We'd like him to be comfortable and well.
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2 ReactionsThank you for sharing your experience. This is very helpful for me.
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1 ReactionYou made me feel good about my choices. I want to move to independent living while I can. But waitlists are long.
This does give me time to digest myself of all the stuff i don’t need. Still getting rid of stuff from when wife passed last year ;after 8 years of caring for her. Now need to start on my stuff.
Thanks for putting all in writing!
-
Like -
Helpful -
Hug
4 ReactionsWe solved the waitlist problem this way: we have a first, second, and third choice type of unit at the community we are interested in. Each has its own waitlist, with the unit we most prefer having the longest waitlist. We're now on all three. They have a two-strikes rule, meaning that they will let us say "no" twice, and then remove us from that particular list. This means, essentially, that we are most likely to be offered our third, second, and first choice in that order, so in each case, we can decide how much longer we want to wait when offered a unit. If our health declines faster, or we just want to get on with it, we can move earlier by being less fussy.
Not every facility works like that, but if you can find a way to get on a mix of shorter and longer lists, then you have an on-ramp if and when you need one.
-
Like -
Helpful -
Hug
7 ReactionsSomehow this just appeared in my notifications. Not sure why so late...sorry.
They have him tablets, and he mixes his glasses of water, about three a day, plus tea, etc, with some salted tomato juice to make the water more appealing.
Your husband will need monitoring. It's not enough for him to take sodium tablets in perpetuity and not know if his blood pressure rises as a result, or if he's getting too little. I would urge you to ask for a two-month follow-up, and than another at six months just to keep tabs on his levels.
-
Like -
Helpful -
Hug
5 ReactionsThanks for your note. The 1 gm sodium tablets did not work, he ended up in the ER and hospital again. They brought his sodium levels up, and monitored him and noticed them going down again. He has been prescribed Tolvaptan two days a week. We’ll take blood test weekly for a while to see which way his levels go.
Auctions - get help. Tag sales - get help - work but fun too. Goodwill ( don’t take many sofas or chair type contributions; ).
Habitat for Humanity. ( they pick up). Maybe church or rehab centers - for patient homes. It’s a lot! Stressful too - but freeing in end!
-
Like -
Helpful -
Hug
2 ReactionsGood tips, @catartist, for downsizing.
@ksdm, how did your downsizing go? What would you recommend to others?
I've read many good recommendations on this site. I am still in the thinking stages!
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Helpful -
Hug
1 ReactionJust had a consultation with a "move manager", who does lots local moves from larger homes to smaller homes and various flavors of retirement communities. This is the sort of service that sprouts locally and is often just the owner plus another couple of people. Just FYI, she describes her services as:
• Guide you in deciding what to keep, gift, sell or donate.
• Establish a floor plan for your new space
• Assist with the packing, sale and donation of items.
• Help prepare your home to sell: de-clutter, clean, repair and stage for a faster sale.
• Enhance curb appeal with external cleaning or upgrades.
• Refer you to movers, real estate agents and other professionals.
• Unpack and set up your new home.
• Hold Estate or Moving Sale if needed
-
Like -
Helpful -
Hug
5 Reactions