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Living With Large-Fiber Neuropathy

Neuropathy | Last Active: 2 days ago | Replies (54)

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@ray666

Hello, efgh1020 (@efgh1020)

I’m also unsure if fiber length alone determines a person’s set of symptoms. My doctors never mentioned fiber length. Only after considerable reading did I learn that fiber length may – may, not must – determine symptoms. As I was blessed with no pain – not even a smidgeon – and my reading had been suggesting no pain “more often” suggests large fiber, I flat out asked my one neurologist (as he’d just concluded my second EMG) if mine was large fiber. As I recall, his reply was “Oh, most certainly.” That’s why I’ve been calling mine large fiber.

However, it wouldn’t surprise me if I learned there’s a good deal of crossover: large and small fiber.

I’m still getting around pretty well. I’ll carry a cane if I’m heading outdoors or going about in unfamiliar indoor spaces. Here at home, I do pretty well without my cane. Luckily, my neuropathy has not spread; frankly, if my two EMGs hadn’t told me I had sensation loss in my feet, I’d probably not even known it. I say I do pretty well with or without my cane; nonetheless, walking – indoors or outdoors, familiar or unfamiliar environments – calls for a little extra caution.

I wish you well! This can be mind-boggling, this neuropathy business. 🙂

Cheers!
Ray (@ray666)

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Replies to "Hello, efgh1020 (@efgh1020) I’m also unsure if fiber length alone determines a person’s set of symptoms...."

Ray, I am wondering if you have ever had a Small Fiber Biopsy? And what appendages were used for your EMGs?