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Bronchiectasis with a side of asthma
MAC & Bronchiectasis | Last Active: 3 days ago | Replies (27)Comment receiving replies
I take Tezspire for my severe asthma and just use a nebulizer for my bronchiecstasis. I had pseudomonas for six months and used a pic line for two weeks and after it came back used Tobramycin in my nebulizer. But I had a strong asthma reaction to the Tobramycin and had to go off it after one month. That seemed to be enough to eliminate it. Because I once tested positive for MAC, though not confirmed on subsequent sputum tests, my pulmonologist took me off azithromycin to reduce risk of immunity. My question is about the nebulizer. Both my pulmonologist and my second opinion pulmonologist suggest I first do albuterol to open my lungs and then saline to expectorate. Problem is I am a figure skater and skate early in the morning. It is such a long routine, in addition to my regular inhalers. I also would like to combine the albuterol and saline just to shorten the time. To top it off I have TMJ, which makes the nebulizer very uncomfortable. I cough up a lot of discolored phlegm when I skate. Is the exercise enough to reduce use of nebulizer? Can I combine albuterol and saline to shorten time? My lung capacity test showed significant difference after using rescue inhaler so asthma is probably worse than bronchiecstasis but they combine badly.
Replies to "I take Tezspire for my severe asthma and just use a nebulizer for my bronchiecstasis. I..."
If you google: " Does getting to breathlessness with exercising help get mucus up and out of the lungs" it might help with what you want to know.
I believe it is the cardio that they are referring to, reaching a point of breathlessness.
Dr. Ann Elizabeth O'Donnell from Georgetown a BE, Bronchiectasis specialist, in a video spoke of wearing a weighted down backpack when walking to get to a point of breathlessness.
Hope all you are seeing here is giving you ideas and answers.
Lovely, skating. Now that takes much determination and perseverance in itself.
Wishing you beautiful toe jumps and bunny hops.
Barbara
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" Is the exercise enough to reduce use of nebulizer? "
This depends on who you ask. My pulmonologist says empathically NO but I've read here that others say yes. I would think it depends on the extent of your bronchiectasis (how many lobes involved, how long you've had it, how productive you are, your disease state, comfort level with skipping nebs, etc.)
Personally, I could never skip a morning session because I wake up with so much gunk to expel. Plus, I want to avoid my chest becoming a breeding ground for pseudo, mac etc. My a.m. session is 45-60 minutes every morning and it cuts into all sort of a.m. activities, which really pisses me off!
Perhaps you could time shift. Skate and then use nebs afterwards? In any event definitely use your puffer prior to skating. The key, I believe, is to get two nebs in along with airway clearance twice a day.