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Living with Neuropathy - Welcome to the group

Neuropathy | Last Active: 22 minutes ago | Replies (6238)

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@kpotter62

I started out with the tingling sensation and feeling the heat and stabbing pains in my feet. Did not have any idea what it was - so went to the good feet store and they thought I needed supportive objects in my shoes HA! It made things worse for me after spending a lot of $ on those supports I fought like crazy to get my money back. Then my Dr sent me to a foot Specialist, after getting X/Rays and waiting for over an hour I met with the Dr only for him to tell me this first thing: Well you will be seeing me the rest of your life and there is no cure for Neuropathy so you will need to learn how to deal with the pain???? I left crying feeling so defeated! Never went back to him. Then I found a sport/Athletic Specialist that said she would try to help but she rarely seen patients with this condition but has seen a few. She sympathized with me but didn't have any real hope other than Take Gabapentin and come back to see her or see a Neurologist, which is what I did next. He told me to go to the Gym and lose weight, at this point I was off balance and very wobbly on my feet. Needless to say, I did not feel comfortable going to the gym. I try to do chair exercises feet and hands hurt 24/7 no real relief other than at night (the only time I take Gabapentin and Duloxetine) to help me sleep a little better. Diet isn't going the best, but I do try, since having Covid 5 yrs ago my taste and smell never came back like it was. I do try the things I use to love now and then hoping I will love them again, not a lot of luck with it thought. My husband saw something on a program for a clinic that specialized in Neuropathy and how this Dr Specialist had Neuropathy in her shoulder and was able to treat it with special diet and the Nerve Stimulator as well as the water stimulation to give her complete freedom again. They were over an hour away, my husband took me for the one appt and $1,000.00 of dollars later we came home with a few things to try, and I did this faithfully for over 6 months. Let's just say it is 2 yrs later and I just refinanced our equity loan (obviously Insurance doesn't cover any of the supplements or equipment that I tried) to get rid of what was owed on all of that trial and error. At this point I use these neuropathy socks take gabapentin and duloxetine at night and go day by day. Always looking for something to try dulling the pain as much as possible. I know there is no cure but keep hoping someone will find one. My husband started having pain in his feet mostly his heals, and after about almost a yr of this he is finally going to the Dr today. So, between us and our 2 senior dogs we are all doing a bit of limping and walking awkwardly. Oh, to age with grace!

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Replies to "I started out with the tingling sensation and feeling the heat and stabbing pains in my..."

Hi sorry to hear of your bad experience. I find amytripline helps somewhat