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Replies to "Phil, Good morning. Forgive me for the delay. Thank you for the inspirational account of how..."
Hey Bro, what jeffmarc said says it all. You should be on ADT to slow it down NOW.
Also, your PCP is just another man with an opinion - not a specialized one either. If he’s been practicing over 25 yrs, he’s probably hopelessly tainted - thru no fault of his own - with the “when in doubt cut it out” mentality. That WAS the mantra, after all….
Not saying that surgery is inferior to radiation - its outcomes are EQUAL. The advantage to doing surgery first is that, in case of failure, you can do radiation down the line; MUCH more difficult in the reverse.
So I have to say that although I am not thrilled with the surgical side effects, it did get me 5 yrs treatment free - and the opportunity to wrestle it again with radiation and ADT. Like you, my gland was bursting with cancer (literally, in retrospect) so being able to have a surgical pathology report was important to me; you don’t get that, either, with radiation.
So all in all, I am happy and content that my decision (just dumb luck) was the correct one. I am doing very well 2 months out from radiation but still beat to death with fatigue from the Orgovyx.
But I know it will improve so I accept it as the cost of doing business. Please keep us posted on your progress and please PUSH to get on ADT: June is still a long way off!
Phil
If you are going to have to wait that long for surgery, you should be on ADT according to doctors I’ve heard from. If they have not offered it to you, you should ask for it. You have to be proactive when you have prostate cancer, Some doctors just don’t move quickly enough. One of the doctors who comes to the Ancan.com Weekly meetings had a urologist who kept telling him everything was OK as his PSA rose. He finally found that he had advanced cancer and a Gleason nine, Because his Urologist ignored The warning signs.
Radiation can completely obliterate your prostate cancer and studies of it have shown that for most people the results are the same if you have radiation or surgery. Of course, if you have surgery, you can have a radiation later to the prostate bed.
Your PCP is not an expert on prostate cancer. Their advice should be taken with a lot of caution. You want to speak to a Genito urinary oncologist or go to a center of excellence To get the best decisions for your treatment.
If your Gleason score is eight or less you might also consider these treatments, They work very well for a prostate that is completely filled with cancer. None of these involve radiation HIFU , Cryoabalation , NanoKnife , TULSA PRO and HoLEP. Many people in this forum have had Tulsa pro.