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← Return to Effect of Statins on PMR pain
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Polymyalgia Rheumatica (PMR) | Last Active: Feb 19 6:16pm | Replies (29)
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Appears that everyone reacts differently to certain combinations of drugs. Have GCA and treated for it x13 months. On Prednisone from Jan to end of August in 2024 and now on Actemra in August '24. Wonder how rheumatologist will know when the inflammation is gone. She will be in to see me at my next infusion. Anyone out there who has recovered from this or gone into remission or had remission and it came back.
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I have done a monthly Actemra infusion for the last 3 years. I have tried to increase the number of weeks between infusions. I have gone as long as 7 weeks between infusions. I don't have a sudden relapse of symptoms but I have subtle symptoms which gradually increase.
My inflammation markers ESR and CRP are often checked prior to my Actemra infusions. When I went 7 weeks between infusions there was a slight increase in my inflammation markers. Because of the subtle return of symptoms combined with increased inflammation markers, my rheumatologist says I need to continue doing Actemra infusions at least every 5 to 6 weeks.