And there in exists the rub….”My understanding”. Social media, third party information, even forums like this are no substitute for personally taking action. There is no doubt, access to Center of Excellence health care is challenging, but ultimately “you are in charge of your health”….. So here is the process…. Gather All your records, imaging, tests result, anything you can lay your hands on (yes, it will become a part time job). Then contact Mayo’s scheduling and be prepared for some challenges. If you are OMG, you need to see a neuro-opthalmologist (ophthalmology department) If you are generalized MG, you need to see a neurologist. Be prepared to quickly provide your records (in an organized, newest to oldest order). You can contact either department’s scheduling directly…. If you end up in general scheduling, ask for the department’s scheduling desk at the clinic. Will you get in “tomorrow”, no. The more quality information you have, better opportunities. You will need to be patient, polity, calm, but persistent….your efforts will be rewarded. Personal point of reference. My wife screwed around for 6 months with local healthcare in the Tampa area. I finally said enough, we are going to Mayo (previous patient from the early days of the Jax location). We did what we needed to,do and within a few weeks, on our way. We have no doubt the provider we met with knew the issue before we walked in his office…..yes, they actually read the material provided to determine urgency, appropriateness, available resources and more. My wife is now 3.5 years in from the diagnosis and 4 years since her first symptoms. Is her care at Mayo Jax worth every obstacle and inconvenience…absolutely.

Point to all this is as I said up top….YOU are in charge of your own health and YOU, only YOU must take direct and constructive actions to gain the care you need. Forget the Google machine, social media and even be skeptical of forums like this….. JMHO, YMMV