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Is it Dumping or SIBO? - or a bit of both?

Esophageal Cancer | Last Active: Feb 23 7:55pm | Replies (11)

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@mrgvw

To be honest... I have no clue... and I've not heard of anyone officially dx'd with SIBO... and I've with hundreds of us esophagectomy patients. But that's not to say it hasn't happened.

And I can't say I actually had Dumping Syndrome (DS) either... to me it was just a catch-all term used to describe what we all tend to see... nasty tummy pains while taking in food and drink... and the nastiness continues as our food passes into the small intestines and causes us more discomfort making its way thru the miles of small and large intestines.

Ok... classic definition of DS... food passes very quickly thru the pylorus and into our small intestines ... known as rapid gastric emptying.... Causes cramping pain, nausea, fatigue, etc. No fibro it seems like we all get this for at least many months... some of us for a year or two... for some of us the symptoms lessen... but never quite go away.

So what did I do about this... and how do I look at this discomfort, and how do I advise others? Well... like most of our doctors who understand (sorta) what us esophagectomy patients are going thru post-op... they chalk up almost EVERYTHING to DS. Bottom line... we have a new geometry down there... our stomachs now hanging vertically and being used as our new esophagus. But the biggest factor (to me) that affects us most, is a branch of the vagus nerve being severed. Our bodies, and ability to begin the digestion process as we always once did... has been drastically altered. Our internals are in chaos... and those all-important communication signals aren't being sent around to our many organs when food and drink are first taken in. So my approach was a bit different. I suffered regardless of what I was ingesting... a little drink... proteins, sugars, carbs, whatever... EVERYTHING hurt my tummy and bothered me for an hour or so. So I figured why experiment with varying diets, how much I ate, what time of day I could eat, what temperatures of my food and drink worked better... IT ALL SUCKED for at least a year or two. So my plan of attack was not to change a damn thing. I wanted to return to normal one day... so I ate whatever the hell I could get down... in what limited amounts (in that first 12 to 18 months)... and I forced my body to power thru it all... get accustomed to this new way of doing things without the vagus nerve... find a way to re-wire itself to once again send those signals around from the stomaphagus to the brain to the liver, lungs, heart, pancreas, intestines, etc. But it was an excruciating slow process. By two years post-op the DS pains were still around... but greatly reduced! My body was indeed finding a new way to get the old job done. I now eat whatever I want in fairly big amounts too. I can go back to eating a few larger meals a day, if I so choose... but I actually prefer to still graze all day long (like we all had to learn post-op). True, I don't feel hunger like I once did... I'm more driven by my taste buds telling me... Yeah, I could sure go for some of that! And yes, my taste buds get me into trouble every now and then and I overeat a few bites too many and I pay the price... but even this is rare now. I pretty much know my limits... and if I want more, I'll just come back in 30 to 60 minutes. I can eat a Big Mac, some fries and my drink, all in one 10 minute sitting now... if it's been awhile since I've eaten. Never thought that was coming!

But as I counsel others, I certainly see, and pay attention to, specific problems they are having post-op. For some they hurt terribly... but technically it's because of the opposite of DS... they have crazy slow motility. They'll go in for their endoscopy, and the GI doctor will see an undigested pill in their stomachs from the night before. They typically have a malfunctioning pylorus and need a stretch there, or a shot of botox (or 3 or 5 in the coming months)... or even G-POEM surgery to correct their slow gastric emptying. But others have the opposite problem, their pylorus sphincters are wide open, or non existent (who knows what the surgeon did while performing our esophagectomies)... and the patient suffers greatly. I've seen it all.

And yes, with usually the top portion of the stomach removed during our surgery, many suffer from B12 deficiency (among other vitamin and mineral absorption issues)... and so they get the appropriate supplements or shots of these things monthly.

Ok... sorry about the book I just wrote, but tbh... I only scratched the surface here.
Be well,
Gary
Southern California

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Replies to "To be honest... I have no clue... and I've not heard of anyone officially dx'd with..."

Thanks Gary. Really interesting reading. I'm still trying to adjust my diet to find something that works. My biggest issue is waking regularly with horrendous reflux. Burning like you wouldn't believe plus coughing and vomiting. It just happens every couple of weeks and puts me down for a couple of days after. I've tried everything to prevent it that I can think of.