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← Return to EGFR Exon 19 Mutation - the Return (?)
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EGFR Exon 19 Mutation - the Return (?)
Lung Cancer | Last Active: Feb 18 4:18pm | Replies (20)Comment receiving replies
@franciekid, I was diagnosed with Stage 2b NSCLC Adenocarcinoma EGFR Exon 19 mutation in June 2018, although the complete diagnosis wasn't available until after the surgery/biopsy.
In 2020, a head CAT scan revealed a 3.2 cm diameter cyst that wasn't supposed to be there. That's too big for medication or radiation, so "Get in there and take it out." was the only option. I was living in a different state than I'd been in during my original diagnosis and consulted with my first oncologist before deciding. He said something I never thought I'd hear, "Don't overthink it, Matthew, it's only brain surgery." The overthinking remark was made because he knew I was an engineer.
Replies to "@franciekid, I was diagnosed with Stage 2b NSCLC Adenocarcinoma EGFR Exon 19 mutation in June 2018,..."
Thank you for sharing your experiences. I have adenocarcinoma EGFR g12c with KRAS mutation. I'd not heard of the mutation until last month. I had middle lobe in rl removed in 2018 and top lobe rl last Oct. It seems TKI s are not very successful in my case. I have another nodule in my lrl that they are monitoring. I'm learning more about TKI s because of feedback to your post, again thanks
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Thanks once again. While this 3mm bright spot on my cerebellum has not been definitively diagnosed as metastasis, I’m concerned that the Tagrisso I’ve been taking since July of 2023 has stopped working. We also reduced my dose for a while - several weeks - due to side effects and I can’t help but wonder if that was a mistake. At any rate, I appreciate both your attitude and your sense of humor. Your brain surgery hasn’t seemed to affect either.