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New Dx of PMR

Polymyalgia Rheumatica (PMR) | Last Active: 2 days ago | Replies (30)

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@jeff97

Maye, my vision is ok. I got treatment for the GCA just in time to save it. I was hospitalized for 3 days and treated each of those days with an infusion of high dose methylprednisolone. I think my GCA is only cranial. I'm feeling much closer to pre diagnosis health as I keep tapering.

For what it's worth, my understanding is that Actemra can go unrefrigerated for up to 2 weeks.

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Replies to "Maye, my vision is ok. I got treatment for the GCA just in time to save..."

Good to hear your eyesight intact Jeff. Loss of vision is the most feared effect of GCA .

Oh , 2 weeks without refrigeration? Good to know My pharmacist advised me to bring a cool bag to collect Actemera , and I’m home from the pharmacy in 10minutes . I’ll double check.
However in in Vietnam and the weather is hot and humid. Best i keep Actemera cold for this trip anyway.