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It's Official I have Prostate Cancer

Prostate Cancer | Last Active: 4 days ago | Replies (40)

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@anosmic1

I'm the poster child for what happens when you don't do enough kegels. I'm now 13 weeks past surgery and incontinence remains a regular concern for me. The one caveat is that my cancer apparently spread into the bladder neck, which increases leaking.

I'm also annoyed with my urologist. I had my follow-up appointment scheduled for next week, but got a call on Friday that I can delay a week and see an assistant, or wait another 2 months to see the guy who did my surgery. After my Gleason went from 4+3 at the biopsy in July to 4+5 during surgery in November, I'm not in a patient mood.

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Replies to "I'm the poster child for what happens when you don't do enough kegels. I'm now 13..."

I never did any kegels before or after surgery. Really had no incontinence to speak of either, At least for eight years after surgery.

Everybody’s different.

At this point, your urologist is really not the guy you want to see. You’re done with urology you have to move onto oncology to get the proper treatment.

You have a Gleason nine that is very aggressive. You want to get yourself to a center of excellence or a Genito urinary oncologist to guide your future treatment.

It sounds like your issue is more complex and kegels may not have been effective or may have needed to be done for quite a while before things correct.

Don’t be hard on yourself, there are things that can be done to correct heavy incontinence, from medications to surgical solutions.

I had a very good surgeon who used an unusual technique on me, one usually only done after there is stress incontinence and is proven to be 95%+ effective - since he was in there already it made sense for him to do that. I also did kegels and hammered my core for 4 months before surgery. I walked away with no incontinence nor any ED, it could be the work, could be the surgeon, could be luck.

Don’t kick yourself, I think luck of the draw in cancer is pretty common.